Tracheopathia osteochondraplastica

So, having recently been diagnosed with the afformentioned condition/disease I really want to see if I can find out other people who have it? I have read about it in scholarly articles but other than the limited research out there, there's very little written about it. I understand the disease, and I have a great care provider, I know it's rare but hopefully I would like to uncover some more about it from others that have it. Thanks.

4 Replies

  • A very warm welcome to you TPO1! I'm sorry I've never heard of this condition so I'm unable to advise you. I'm sure before long , someone will come who knows all about it & can give you the help you need. You could give the BLF a call, they would chat to you about your condition & answer your questions. Take care

  • Thanks Jessy1, most people I speak to haven't heard of it to be honest! I rang the BLF but they hadn't heard of it either....

    Maybe I have a mission on my hands to raise awareness?! 😝

  • The BLF haven't heard of It?Really? I thought they would be the very ones to give you advice. It is a lung condition after all, I did google it! Did you try putting your illness into search box & see if anything comes up? Good luck

  • Yeah, there's just hardly anything out there!! I would really like to know the incidence of it but there's so little research on it. Thank you

You may also like...