Thank you so much for all these responses, I'm just reading through them all now.
Re: last night when I made my first post, I realise now the information I gave was a little scant so here's a little bit more about me;
This is the first year since the age of 18 that I have not had a gym membership, I've always been very active and prior to my rheumatoid arthritis diagnosis in 2009 had run 4 marathons, thereafter I got on my bike and although didn't compete I would cycle every day.
I live alone, with my two little westies Katy & Archie and have always been proud and protective of my independence. I worked full-time and long hours as a Project Manager for Schlumberger until the end of April this year.
Fast forward to the tickly cough which started March 2014, then the unable to breathe episodes and panic attacks which came sporadically from August 2014, autumn/winter 2014 passed in a haze of coughing until I was sick, passing out due to low oxygen saturation levels and fatigue like nothing I had ever experienced before.
My wonderful GP whom I cannot fault has been extremely supportive since my first visit to see him in June 2014, at one point even forcing an admission to the observation ward in an attempt to find out what was happening to me, sadly this was in vain as he couldn't get anyone to listen to him either.
February 2015, my first appt with a chest consultant, he took notes and appeared to be listening yet still felt the need to suggest it could be physiological, my first CT scan showed some abnormality in the form of smudgieness, opaque ground glass on the left lung but this was dismissed as unexplained / resolving infection and no further action was required. With progressive symptoms, the following month I was told heartburn and or indigestion were the culprits, despite never having suffered either of these ever but my protests did garner some further tests and in June this year was told it's cellular pneumonitis, it's reversible, come in to hospital for some Medrol infusions, you'll respond well to the treatment.
By then I'd started taking Omeprazole, Alendronic, Calci-chew and Prednisolone in tablet form but still felt full of hope based on the most recent "diagnosis" from my consultant.
Only 7 weeks later at a follow up appointment, Mum and I sat waiting to hear the news about how much better I must be getting as he said it was reversible etc. etc.
We left there in floods of tears after finding out the condition is in fact not reversible, not cellular, not indigestion, heartburn, infection or physiological but is in fact fibrotic and he suggested there may not be enough time for me to even complete the process that gets me as far as Freeman for the 4 day assessment.
He commented that the speed at which the disease has progressed has taken him by surprise and commented I'm concerned at the rapidity of your deterioration but this is clearly of no consolation to me or Mum.
This bombshell was dropped only 3 weeks ago but I have now had 4 days of tests done in Aberdeen, Freeman now know of me and Prof Corris is currently reviewing my situation with a view to getting me down to Newcastle for the next assessment.
Will keep you all posted....