Hi! I wonder if anyone is in a similar situation. As Dr described to another, I had sudden onset of difficult Asthma with dramatic deterioration. I'm only 53, and it commenced out of the blue, back in 2009. (It is also highly likely I have Churg Strauss Syndrome, and am being treated for it) I was forced to take I'll Health Retirement & have had many emergency hospital admissions over the last few years. Since starting Mycofenalate Mofetil, together with Pred & a plethora of inhalers, nebs & inhalers, the Asthma is "delicately stable".
However, my breathlessness continues, and is severe, at the slightest exertion. It is very different from Asthma breathlessness, I am not wheezy, but still pretty much gasping in minutes. Rescue Pred doses & nebs have no effect..My Consultant did loads of tests, checking me for Heart Failure , Pulmonary Embolism (& cardio pulmonary Exercise Test too,) which thankfully was not the case. He & my Area Consultant in Sou (I'm in Jersey) have now decided my severe breathlessness is down to DECONDITIONING. True, I have become frail over the last 5yrs, but since commencing Resp Rehab classes & much slow but daily work in my garden, I feel much stronger, but the severe breathlessness is totally unchanged, 6months later. (Resp rehab re monitoring showed an increase in fitness of 50% which is fantastic) this continual severe breathlessness is depressing. Will it ever improve?? Could it be COPD or similar, not asthmatic??
Would be grateful for any ideas
(I am not allergic to my beloved cats.
Sorry RORY is upside down!!)