Consultant: Hi folks, just back from my... - Lung Conditions C...

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Sheilab123 profile image
16 Replies

Hi folks, just back from my 6mth check with consultant, good news in one way as he says there is now an injection/tablets? that will keep the dreaded H.I. bug away, had blood tests to see if I'm suitable for it. Also tested for immune system, any idea why guys? Though I have been fairly infection free of late it's only because I've been on steroids more or less all the time for the last year, it would be lovely to come off them and be well, having gained 4st in a year! and I'm only 4"11! Would really appreciate your opinions. Take care you lovely lot xx

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Sheilab123
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grannyjan profile image
grannyjan

good news for you. Steroids supress you immune system as you know, so probably need to see if things have returned to normal. Hope it works out for you.

jan x

Sheilab123 profile image
Sheilab123 in reply to grannyjan

Thank you Jan, I hadn't thought of that, i always seem to get a mental block when finally seeing consultant! xx

cofdrop-UK profile image
cofdrop-UK

Good news Sheila. I woud be really interested to know what this medication is as I am colonised with HI and will be seeing my con next week. Hope it works well for you.

cx

Sheilab123 profile image
Sheilab123 in reply to cofdrop-UK

Hi Cough, the medication is called Phyllocontin, one tablet twice a day, hope this helps xx

cofdrop-UK profile image
cofdrop-UK in reply to Sheilab123

Thank you so much - Going this week. XXX

Sheilab123 profile image
Sheilab123 in reply to cofdrop-UK

Your welcome, let us know how you get on. Good luck! xx

cofdrop-UK profile image
cofdrop-UK in reply to Sheilab123

Just looked this drug up hun and it looks like it's a bronchodilator.

cx

Sheilab123 profile image
Sheilab123 in reply to cofdrop-UK

Well done I will have a look xx

Sheilab123 profile image
Sheilab123

Thanks Cough, I will keep you posted, don't know about you but my mind seems to go blank when I see the consultant, then when I get home I remember everything I wanted to ask! Like you I am colonised and also a bronch. She also said it should make breathing easier, which would be brilliant, FEV 20% so any improvement would be great. Take care xx

cofdrop-UK profile image
cofdrop-UK in reply to Sheilab123

It would be great if you would keep us posted - I would be very interested to see how beneficial this is for you. I would be good if it improves your FEV. Have you tried making very short list - bullet points or you get a bit lost - to take in to con.

I wish you the very best with this medication.

Love cx

Sheilab123 profile image
Sheilab123 in reply to cofdrop-UK

Will do Cough, not sure if I will know in time for your con appointment, depends how long blood tests etc take, but you could mention it. Short list is a great idea! Take care xx

What's hi

mskpjb profile image
mskpjb in reply to

Just what I was going to ask ! Sheila x

Sheilab123 profile image
Sheilab123

Haemophilus Influenzae bacteria.

freefaller profile image
freefaller

Still got my HI back on antibiotics. If this doesn't clear up am going to see a consultant immunologist - don't care if I have to pay privately as there is only 1 in Wales so obviously very busy - poor man.

Sheilab123 profile image
Sheilab123

I will keep you posted Freefaller, should get my results back in the next day or so, then you can go fully armed! xx

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