Well after months of waiting and a major mess up by the hospital. I have had a diagnosis of emphysema
I am sorry to hear that Paul but at least now you have a label and know what you are dealing with.
Best wishes to you.
You will get a lot of support from this site lot of people on the site have it I have for 4 years and mange with support from people on the site you will get through it with help you will have your ups and downs which we all have to do you will manage
Feel a bit devistated to be honest
Hi everyone does when they get the news they have a chronic illness, but you will learn to accept it and adapt. Do you know your lung function? Hopefully it will be mild. You can do a lot to keep it steady with a good diet and exercise and not smoking. It is by no means a death sentence so please don't fret too much. x
I went back over your posts & I'm not surprised you are feeling let down! If it's any consolation at least you know what you are dealing with now....probably little consolation to you now, I know, however NOW you can get the RIGHT treatment, you know what you are dealing with....my Dad lived with Emphysema for well over 20 years, and he continued to smoke until he was on oxygen ! He would have faired much, much better if e-cigs etc were around, or stopped smoking!
What medication have they given you?
Take care & Easy breathing,
join the club paul I was officially diagnosed 2 years ago when I was 38 but had it a lot longer . like coughalot said good diet exercise and no smoking make sure you get your flu jab and pneumococcal jab too .good luck take care
This is the fun part. When I first posted on here I went to see the respirate nurse. Sh sent be for a lung function test. With this results alone and the fact she could here something on my left lung she would not diagnose anything. So referee me for a LFT WITH gas transfer test and a lung CT. I had the LFT THEN THEY DIScharged me with no diagnosis. I then waited and waited still no ct. eventually thanks to my GP. A week last Wednesday u had the CT. MY diagnosis was made tonight at 6.30 pm by my specialist over the phone. How crap is that. Now got to wait till 4 though September for full run down and treatment plan.
Hello Paul, emph is not good news and its a bitter pill to swallow but at least now you can educate yourself about it.
Keep dropping in, ask questions about anything that concerns you and try not to worry . Please don't google it its just not all true or a fact what you read on the www.
I have it as well but stopping smoking, eating more healthy and exercise have been good for me and I've improved 'a lot' so it is possible, a good pma is so important, I think it is the thing that's helps me the most.
Now you know what's going on inside don't let it worry you to much they told me at 8:30 pm valentine day I had Acute Intestinal Emphysema 5 years ago so I was 46 you just need to take that bit extra care of yourself don't trust anything on the internet or by the end of the of week they would have you dead ask your nurse or doctor but most of all don't worry as that's what will make you ill
You take care stay safe
Hi Paul,I have very severe emphysema,Fev1 is 23%, gone up 3% recently due to exercise I presume as nothing has changedI,m hoping to have valves fitted soon.I get very breathless but continue to do stuff just take a bit longer ( a lot longer )Stopping smoking is the most important first step then good diet and plenty exercise.Remember you will NOT die from being breathless,your body won,t let you.try to learn some breathing techniques to avoid panic attacks there are plenty on YouTube.Best of luck! D.
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