My daughter in her 20s has IPPFE and has been told that Pirfenidone may help her delay the progression. It can not be prescribed for her condition as not proven to help as so rare a condition.
Pirfenidone can be bought on line form regulated sites with a prescription which we can not get. We are living a nightmare knowing there is a drug that may help her to live, that we are willing to pay for yet can not get a prescription for. We are scared to buy from unregulated on line site as may be harmful.
Can anyone help. How can we get Pirfenidone. Grasping at straws, living in hope.x