It always happens at the same time!

Just when you think it is safe to venture out? Life decides to make it just that little bit more difficult. Since the Lung doc changed my heart tablets and then made me feel so ill and throw the heart out to such an extent that I ended up in A&E and then Ambultary Care for many weeks of great treatment by a great team.

One of the legacies from all this is my blood INR levels have been unstable. I had a phone call on the afternoon of my Blood test to ask me all sorts of questions as to why I have gone from 3.5 to 5.4 in 2 weeks again! My last 4 tests have been 2.8, 5.4, 3.5, 5.4! I have a range of 2.5 to 3.5 3.0 ideal which is the higher level than most. But with the added bonus of multi conditions puts me at a greater risk? I was told to stop taking warfarin for a day and call them the following day after 13:00 to see what to take before my new paperwork arrives. The next day My sister called and reminded me it was the first year anniversary of our mothers death from leukemia. It was obvious that she was in need of a cuddle so the wife and I popped over to see her. As a result of this I ended up being late on my call to see what I should take! I took an executive decision to take 5mg and speak to them as I need to have an xray on my right knee in the morning.

Bright and early and I had the Xray with those stupid gowns that make your bum stick out no matter how well you try to do them up? Over to the Phlebotomy/warfarin rooms Pushed the buzzer and a technician came and I explained my dilemma, to be told to wait at the Warfarin room and ask their! A Lady came out so I knocked and once more explained to the Warfarin nurse what has happened who then spoke though a hatch to a more senior nurse who told me I need to speak to the people in the room I had been sent from and ask for the outpatients warfarin department?

By this time my knee is giving me more gip so off I limp back and ask for the outpatients warfarin department. Buzzer pushed and I think it is someone that knows who I need to see and takes my name and DOB and disappears to come back with a nurse. She asked what I did last night so explained I took 5 mg but she said we do not like to drop it that low? Well it was decided that I should now take 6mg a day instead of the 6 /6.5 alternative days. I would normally have an appointment time at the clinic and not wait in the normal phlebotomy room were you take a ticket and depending on the day wait and wait some more. I was promised that I should be on the list again but they have no slots next week?

What I do not get is I have been taking 4 to 4.5 for near on 30+ years and had the odd blip but now I am 50% higher and unstable?

I do wish the Lung Doc had left alone my tablets I was at least stable then!

Be Well

22 Replies

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  • Hi Offcut....why is nothing ever straightforward....I hope things will settle down for you.

    I can sympathise as my mother has been taken into hospital 250 miles away from me. Yesterday there was a stream of phone calls from her GP, nurses social workers....but in between I had phone calls from my health centre and pharmacist about my lung conditions. Then texts and emails fom my daughters.

    In the end I think I was more confused than my mother.. Ended up talking about my COPD to her nurse.

    I am sorry about your late mother, and I am glad you could help your sister at a difficult time. Take care of yourself and hope you have a peaceful weekend.

  • Thank you.

  • You've got your hands full - or really your brain!

  • You have been through the mill. I agree with you re changing tablet doses, it don't always work out for the best. I hope you can get this sorted soon. I hate taking one step forwards then ten back because some doctors think they know best. Take care

    Kindest regards

    G J xx

  • His idea on paper sounded fine it should of improved my inhaler intake but it made me ill instead and he would not change me again. It was the cardiologist that was big enough to change another consultants choice as he could see how unwell I was becoming.

  • Here's hoping everything settles for you soon. Take care.

    Kindest regards

    G J xx

  • oh dear they even get in here.

  • Hi offcut, see you got a 'friend,'!. Sorry you are having such a rough time again & hope it all gets at least stable soon. Love Margaret x

  • I think it has been removed? It will get sorted at some point but it does not want to do it quickly it seems?

  • Hope things settle down for you Offcut. Love waiting in hospitals and being sent all around the place.

    Sian

    xxxx

  • It is not a huge hospital but still gets tiring and expensive with the parking when you have to go a lot :(

  • hi offcut do you have pay for parking, have you not got your blue badge yet.

    tam

  • Even with BB you have to pay in our hospitals but they do have a good amount of bays.

  • Dear me Offcut what a lot to be dealing with. It never rains but it pours or so it seems. I do wish you well and hope that any day now something good can be sorted out for you and you will be stable once again. Good luck to you. xxx

  • Me too!

  • You are certainly having a rough time at the moment. Hope it all gets sorted and that you will soon be feeling much better. Take care xx

  • Thanks

  • Yes I chip my bit of good will in as well - sounds very frustrating to me you poor thing. x

  • They Just seem to keep on ;)

  • Such a shame, just when you felt things were stablilising. Hope everything stabilises for you soon Offcut. Take care.

  • I am sure they will but it is not playing at the moment :(

  • I can help with the gown half way down on the left side just below the rib cage is a tie the right side covers the bum and ties on the left side good luck next time

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