I was wondering if anyone could help, my mum is 77 and has IPF she was diagnoised September 2014 she left hospital with steroids and a course of cyclophosphamide, which wasn't completed due to a chest infection She just about manages with light day to day chores and tries desperately to remain active. But of late there has been a noticeable deteriororation in her legs, they are very jelly like. I know that the steroids aren't helping and her consultant has advised that a new drug pirfenidone, might be the answer, but mum being older and sometimes confused is reluctant to change drug, due to the long list of possible side effects the doctor told her was possible. No amount of persuasion on my part is changing her mind. I was wondering if anyone had tried this drug and what the benefits if any where. This is such a scary illness and one i know very little about other that what i read on the internet. It seems there are support groups but they ar quite a distant from mum. Many thanks in advance
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