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amnihami profile image
42 Replies

Hello folks. I'm new here, but not to lung problems. Have had Bronchiectasis since I was 18 (now 65). Managed welli til about 2 years ago. When I sampled the delights of Polymyalgia, Osteoporosis and Gallstones. Turned my life upside down!

Enough negativity! !!!

I look forward to 'chatting'.

Best Wishes

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amnihami profile image
amnihami
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42 Replies
newlands profile image
newlands

Hello and welcome. Lots of lovely people on here hope we can help

Take care

Dorothy

amnihami profile image
amnihami in reply to newlands

Thank you

Good Morning, Welcome to the site. I care for my husband who has severe COPD. I love this forum - lovely people with great advise. Take care, lots of love TAD xx

amnihami profile image
amnihami in reply to

Hello

I'm sure its a full time job taking care of your hubby.

I'm sure I'll benefit from the forum.

Anni 😊

Louisiana profile image
Louisiana

Welcome :)

amnihami profile image
amnihami in reply to Louisiana

Thank you

😀

pergola profile image
pergola

Big welcome, amnihami. Lots of great people here to chat, laugh etc. love \Pergola x

amnihami profile image
amnihami in reply to pergola

Thanks.

We have to have a laugh don't we.

😃

To have Bronchiectasis for such a long time is a fete in itself and its good for members to see that they can manage it........especially new ones who have just been diagnosed then come on here terrified that their life is ending.

Welcome to the forum a lot of us have that including me and also have COPD which you would think could solve the problem as one is a widening and one a narrowing hahaha x

amnihami profile image
amnihami in reply to

Hi

You would think it would!

That would be too simple.

Best wishes

Anni 😁

Hello amni and a warm welcome to our family :)

I'm sure you'll be in contact soon with other bronchiectasis sufferers as well as the rest of us here. I have severe asthma and copd but have M.E too; have also been diagnosed with osteoporosis and more recently diabetes and gallstone problems. Maybe we could chat some time...Lovelight

amnihami profile image
amnihami in reply to

Hello Lovelight,

Lovely name. It seems to be one thing after another doesn't it!

Thanks for your welcome

Yes be good to chat.

Anni

Hello there and welcome. Another lifelong gobber here. Diagnosed at 3, 65 now. The folks on here are great, whatever they are putting up with. The medical advice, sympathy and advice with our bureaucratic battles, lovely pics of pets and the countryside and silly jokes all help to support our physical and emotional wellbeing. Don't hesitate to ask if you have a problem.

amnihami profile image
amnihami in reply to

Thanks

Nice to know other folk have had Bronchiectasis long term .

Good to hear emotions mentioned. That effect seems overlooked.

Best wishes

Anni 😊

angse profile image
angse

Hi Annihami welcome to the site, really nice helpful people here, they go out of their way to give advice. Annette

amnihami profile image
amnihami in reply to angse

Hello Annette.

Thank you

I'm looking forward to getting involved

Ann😀

angse profile image
angse in reply to amnihami

Your more then welcome Ann hope you get all advice you need. Annette

Toci profile image
Toci

Hello and welcome.

amnihami profile image
amnihami in reply to Toci

Thank you Toci.

Pentreath profile image
PentreathVolunteer

Welcome Amnihami - you will find a lot of support and help on this forum. I had my asthma check this morning and found that the asthma nurse had been down for COPD whereas my diagnosis was bronchiectasis in both lungs! She is going to ask the doctors what I should come under. Had not heard of bronch becoming COPD before!

cofdrop-UK profile image
cofdrop-UK in reply to Pentreath

That doesn't surprise me at all. Saw one of my GPs who is one of the more bronch savvy docs and after our consulation he wanted a sample (would have brought and filled in my own form if I had known) and after all the chat of bronch he put COPD on the MC&S form. I think it is because bronch used to come under the copd umbrella but not now.

cx

Pentreath profile image
PentreathVolunteer in reply to cofdrop-UK

That is interesting cofdrop - it doesn't bother me what they call it really as they are very good when I need help.

cofdrop-UK profile image
cofdrop-UK in reply to Pentreath

That's good to know hun.

cx

inhaler1 profile image
inhaler1 in reply to Pentreath

I have Broncheichestis and my condition was written down as COPD on my only admission to hospital a few years ago.

My Husband insisted it was taken off my records straight away, asit does make a big diffrence to things such as treatment and Travel insurance.

I am a non smoker and condition was bought on by Low immune system and Multiple a Scelerosis .

Hope this helps, as I know a lot of people feel it comes under the same umbrella as COPD .

Any comments welcome as I sill struggle to understand the condition.

Pentreath profile image
PentreathVolunteer in reply to inhaler1

Dear inhaler

Thank you very much for this - I should find ou tomorrow what the asthma nurse was told by the doctor. She has also recommended a different inhaler as my hands are painful with arthritis and I have problems pushing down on the inhaler (Flutiform) to release the dose.

amnihami profile image
amnihami in reply to Pentreath

Lets hope you get some answers.

Best Wishes ☺

amnihami profile image
amnihami in reply to Pentreath

Hello.

Thanks for your welcome.

Here's hoping you have discovered which category you're in

Anni 😊

amnihami profile image
amnihami in reply to Pentreath

Hello

Thanks for welcome

Hope you've been categorised now

Anni 😊

cofdrop-UK profile image
cofdrop-UK

Hi hamnihami and a very warm welcome to you. Anther lifelong bronchi 5 months old - now 67 and like you the last few year have proved more troublesome - asthma, IBS, osteopaenia. Have you had your gall bladder removed h, I had a lap chole a few years ago, so that's one thing less to be bothered by.

Love your lovely smiley piccie and look forward to seeing many more of your posts.

cx

amnihami profile image
amnihami in reply to cofdrop-UK

Hello

Thanks for your welcome

No

Havent had gallbladder out.

seeing my gp to see what can be done. I'd lost nearly 4 stone - had a flare up recently and lost another 6lbs.

The smiley picture was taken before "poorly nannie" as .grandson puts it. He's 5!!

The smile is still around though! !

Sheilab123 profile image
Sheilab123

Hi Amnihami and welcome to our lovely forum. I am a bronch copd and osteo, you've got me beat on the poly though, ouch! Though someone will be along with words of wisdom, or humour! Take care I shall be looking out for your posts. xx

amnihami profile image
amnihami in reply to Sheilab123

Thank you fot your welcome.

Anni ☺

grannyjan profile image
grannyjan

Hi amnihami, I too have bronchiectasis and other lung problems due to ra. Got worse since on life support in Oct last year. On hols at moment but will possibly starting nebuliser when I get back, as cough is chronic and ab's since Xmas doing no good as have pseudomonas which is resistant to just about everything 😊 little bliters.

Anyway welcome to the post it family 😁

GJ x

amnihami profile image
amnihami in reply to grannyjan

Hello.

Yhanks for wel o.i g me

amnihami profile image
amnihami in reply to amnihami

Whoops. Try again.

Thanks for your welcome.

Hope you hols are doing you good!!

Anni

grannyjan profile image
grannyjan in reply to amnihami

Thanks chilled for 2 weeks home tomoro x

freefaller profile image
freefaller

Hello and Welcome. You certainly have enough to be getting on with.

Sian

x

amnihami profile image
amnihami in reply to freefaller

Hello there.

Thanks for your welcome

Fingers crossed I think Poly is on the way out

Anni😊

velvet55 profile image
velvet55

Hello Amnihami

a warm welcome to this site. The members are great and have lots of helpful advice and expertise, there it lots of friendly people here who post socially , with lots of witty stories.

I have asthma, moderate copd, and last week found out I have an enlarged heart. Enough of me.....I am normally the quiet one...( not )

Glad you found us

Velvet xx

amnihami profile image
amnihami in reply to velvet55

Thanks

I'm very pleased I've found the forum.

Best Wishes

Anni ☺

hufferpuffer profile image
hufferpuffer

Welcome to the site, I hope you find it helpful and friendly :) Sounds like you have had your fair share of problems! Always here for a chat, take care,

huff xxx

amnihami profile image
amnihami

Thank you

May well take you up on that.

Anni 😀

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