I am a 40 year old woman who was diagnosed with multiple clots in the arteries to both lungs back in February. After 2 weeks in hospital, I was discharged and am on warfarin for life as the cause of the emboli remains unknown. Life has been a rollercoaster ever since! I was given very little information about what to expect post PE and have extreme fatigue, chest pain, shortness of breath, palpitations and tachycardia. Occasionally, I experience similar symptoms to those I had prior to diagnosis and am never sure whether that is normal or requires an ambulance! My doctors seem pretty blasé about it all but my consultant has ordered an echocardiogram, a lung function test and 24 hour holter monitoring. Most of the time, I feel like they are humouring me and think me somewhat paranoid, but to be quite honest, I’m terrified. I feel like a ticking timebomb. My INR seems to swing from far too low, to far too high (7.4 last week). It is either low enough to worry about another clot forming, or high enough to worry about haemorrhaging. Is anyone else out there as terrified as I am?! Feel much better just writing all that down…….
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