Worried mum. Please help!

[Khakistan23]

Hi, without going into detail too much, my daughter has been treated for persistent bronchitis for over a year and I have received a letter from her consultant stating that her diagnosis is suppurative lung disease😥 I have no idea what this means. Can anyone help please?

[peege]

Hi, I'm sorry I dont know what this means either.

Someone who does may be along shortly.

Are you in the UK? Try calling the BLF helpline. They are marvellous and can give good advice 03000030555, office hours. Good luck. P

[Khakistan23 in reply to peege]

Thank you, I really appreciate your advice

[stilltruckin]

Most of the sites about this seem to be in Australia and New Zealand for some reason. This one seems to have more comprehensive information than the others:

mja.com.au/journal/2010/193...

[Khakistan23 in reply to stilltruckin]

Thank you

[memah]

You can get good information for the internet , google it and you will see the definitions .

[Hidden]

Hi there Khakistan. I am not sure where you are but it is strange that you were just given a diagnosis of superative lung disease. This covers cystic fibrosis, bronchiectasis and another condition which I had never heard of. It is an old fashioned, and I feel, offensive, term. You need to go back to your consultant and press them for a proper diagnosis of exactly which condition she has. She will need a programme of treatment including her drug therapy and physiotherapy which is very important. You will need to be educated (will probably have to do it yourself) in handling and living with the condition. Do not worry too much. I have had extensive bronchiectasis since I was 3. I am now 65, have had a full life, lived all over the world and had two children. It is all in the management. I believe that there is also a website for parents of children with these conditions. Maybe BLF could help you find this. Good luck.

[Offcut]

news-medical.net/news/20121...

Might help?

[Dmactds]

Chronic suppurative lung disease, or CSLD, is used to describe a range of lung diseases characterised by a chronic wet cough and progressive lung damage. We are interested in the non-cystic fibrosis forms of the disease with a focus on bronchiectasis – the severe form of CSLD.Nov 26, 2012

news-medical.net/news/20121...

[Khakistan23]

Thanks guys, that info really helps

Stillstanding63, you're an inspiration. My daughter has an inhaler, nebulises and does physio twice a day. Her lung function is up from 63% to 72% from an admission this feb. it's been a very slow progression and symptoms have increased dramatically if she catches a cold etc. The ct scan indicated prebronchial thickening and the consultants have been positive that it's unlikely she has permanent damage but then the letter indicating she has suppurative lung disease has thrown me. her sputum sample notes have bronchiectasis written on it and I really am clueless bout this, other than what I've googled. So, the consultant hasn't given a diagnosis but it seems it's leading up to that. I just wish they were more helpful in their explanations as it's an area that I know little about other than learning as I go along.

Thank you so much. I am very grateful.