Re-posted for "Tgirl.: 'BOOP' I just... - Lung Conditions C...

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Re-posted for "Tgirl.

Brecksfield profile image
3 Replies

'BOOP'

I just wrote my entire story and it was gone, what is up with that?

December 2014 I had bronchitis that turned into Pneumonia, after being on antibiotics and steroids on and off until April. I was sent to a Pulmonologist and he ordered an x-ray that showed some thickening in both my lungs. After a Bronchoscopy and biopsy he said that I had 'BOOP' a type of pneumonia that no longer can be treated with antibiotics, only Steroids. Luckily my lungs do NOT have scar tissue and I should have a full recovery in time. This could take 6 months or more.

My pulse ox is very low without oxygen.

No oxygen: Doing laundry 84 / 106

No oxygen: Sitting still 10min after 96 / 80

With oxygen: Sitting still 98 / 77

With oxygen: Standing (4min) brushing my teeth 94 / 104

With oxygen: Doing laundry (6min) 94 / 91

Yes oxygen has helped but I still be terrible, I am unsteady and shaky. My feet, hands legs are tingly and I think that I could pass out any moment when I don't have the oxygen on. Not to mention my vision is so blurry, I have got to get new glasses. I have been told to wait until all this clears up to get new glasses. So blurry it is.

With my oxygen numbers. How do I exercise? I don't have the energy, I think I am doing well when I can stand at the sink and do dishes. Of course I have to go sit down a couple of times to take a break. But my husband thinks that with my lack of movement not to mention the wonderful side effect of the prednisone, I am quite a bit puffy. Any advise.........

Tgirl 7 hours ago

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Brecksfield profile image
Brecksfield
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3 Replies

I have very severe emphysema and I'm on half a litre per minute oxygen for 15 hours. The way I've improved myself is by keeping active. When I was first diagnosed 4 years ago it took about 5 stops to get up my 14 steps upstairs. Now I do it in one go and hardly get puffed.

As for losing your posts. I use Lazerus. Its a programme that will save and recover things you have written.

Google " Lazarus form recovery "

:)

stone-UK profile image
stone-UK

Hi

Have a look at a few of theses, they can all be done sitting or standing at the sink.

5/10 seconds each one you can do, will be a good starting point, two/ three time a week is adequate. With oxygen.

healthunlocked.com/blf/post...

Cyberpunk profile image
Cyberpunk

Hi there it's the steriods giving you blurred vision I was on them for a year and the side affects are horrendous they made my breathing worse my blood sugar was sky high nightmare could not get off the steriods every time I cut them down breathing got worse then the lung specialist put me on uniphyllin twice daily now I'm off the steriods don't use my oxygen as often feeling a lot better try and get off the steriods cos they will make you worse I wish you good health and take care

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