Restrictive Lung Disease

Hi Photolady I really can't help you on this, I have well they say mild COPD, but breathing bad, I'm sure there will be someone on here soon to answer your question, who is more knowledgeable, but what I would say to you is go to A+E if breathing gets that bad at night, I have 4 chronic diseases, and I ignored one of them trying to be strong, and I am lucky to be here, I hope you get some relief, and you will get good advice here, keep well!as possible. Annette oh about the distended stomach, I have no idea, and also to be diagnosed over the phone is ridiculous, you can also ring the BLF who will give you good advice

Photolady - If you feel that your Medication / treatment isn't working or you feel you are deteriorating, hassle your doctor, because its the doctor that refers you, and if you can't get in to see him for a few days tell them that you want a home visit. they will soon fit you in. He can't know how you feel unless you tell him.

I appreciate that doctors are under a lot of pressure, and target meeting objectives which I sympathise with but your health has to be the priority

Plumbob

I am an RLD sufferer as well. This past week has been bad for me too. I would say that if you can get on a PR course do.

Did you have a silly cough for some time as this can cause the distended tummy as you are sucking air in the stomach.

Did they say that there is asthma as well or damage?

Did they do a spiro at the GP and hospital in the plastic box?

Xray and or CT scan?

Sleep apnoea is common for RLD which I know does not help. Maybe the machine needs new pressure settings?

Be Well

Hi Photolady, how did you go with visiting your specialist. Did you find out more about what is going on with you? Best wishesxxx