Im just back this evening from 5 day stay in hospital. Within the 2 week period of illness my resting sats had gone from 93% on air to 87/88% on 4 litres with reflux spasms and bad asthma, very frightening and unbelievable. The c-pap thing was a red herring which i realised when i got your kind replies on that post. I think my gp was casting around in a bit of a panic as no-one could understand the plummet in O2 saturation. They were wanting to investigate whether i had a pulmonary embolism which i don't but apparently you can have a lower level wide spread more chronic clotting in the lungs which will have to be investigated later.
Anyway it turned out what i do have is double pneumonia with fluid on lungs and an unholy dose of thrush in the mouth, something I've never had and never want again. Have lost 10 pounds i can't afford as I'm skinny already, so important to eat and I've a big appetite but agonising on thrushy tongue. Reflux spasm coughing has been a major problem when eating and post-eating too. But at least now coughing is very productive
Sats have finally began to come up again and are currently being kept between 88-92% on 1 litre and still improving, so they decided i could be discharged and managed at home by our community respiratory team. The team commode is here and multiple other kit as i can't walk up stairs for a while. Rita is finding things to cook that are less painful to eat, everything mashed and very bland
Treatment in the respiratory ward couldn't have been bettered. All levels of staff were spot on and very friendly and empathic. I have had a horror of hospitals, a left-over from teenage years when my father was almost permanently in the QE in Birmingham and died there. As a retired happy camper i took organic baby wet wipes with me and what with using a commode i totally avoided the shower and toilet where i thought it might be easy to pick up hospital acquired infections. The experience has got me over my morbid fear so that now i know the hospital is there as a good resource.
I haven't been able to go online for around a week, upset you've been worried and its so lovely to see the site again. No energy to explore what I've missed yet, but i will be when i feel stronger. Just knowing you are all there supporting each other is uplifting, not to mention the wonderful love and loyalty you've shown me too. Special thanks for all the pms which i will reply to as i get stronger.
I hope everyone is in as good nick as possible. I'll post again in a few days.
Sleep well my friends.
Trees = oxygen = breath = life
(my new signature, from a Network Rail direct action a few years ago to save threatened trees in the town - we won!)