Hi Everyone..Well I had my appt on 26/11/2014..saw a Consultant who works closely with Prof Wilson, had x.ray & bloods on arriving, then consultation with dishy consultant.😉 He listened to lungs & heart & informed me I do infact have systolic heart murmur! We talked about my history & probs I,ve had getting to see my local hosp consultant, since he diagnosed me with Invasive Aspergullosis..He gave me appt to go back in 8 wks, but may be sooner if bloods Imuno cap high as it had been around 200 in April ..Journey there & back was not easy, I drove to Grove Pk to pick my daughter up & then left my car there & got train to London Bridge & 2 tubes th South Kensington, the 15 min walk to hosp..
24 hours later, the consultant I saw, rang me himself! to say blood Imuno cap reading too high & I need to be admitted for 2 wks..as was xmas coming up, I said after would be better..blood been high for well over a yr, so another few wks can,t hurt! I got appt through for 26/1/15..but no bed on day so went in on 2 Feb instead..my son collected me & daughter came too, so did,nt have to leave my car in London..From the minute we got there, I was having bloods & x.ray & questions & then admitted to a ward with just 3 beds..Food was next & Altho I have been losing appetite & weight for previous 9 months, food there is best hosp food ever.!! I had Bronchoscopy the next day & not best one I,ve had as sedative not working as was so fast & aware of everything..it worked after & I had oxygene mask on? I saw my Consultant when back in ward & he said the wash performed had not cleared lungs & still congested at bottom of both..plus being left so long without treatment, I now have severe damage to left lung & infection around it, so I would be having 10 days of i.v antibiotics & anti fungal too, but see what test results show in next couple days to access meds..I asked about the Emphysema he mentioned in letter to my GP about my consultation in Nov, he explained I do have symptoms of it, but not the type caused thru smoking? My local hosp consultant had never mentioned that before? I was unwell later that day, with high temp & dizzyness, can happen after Bronchoscopy, it seems, plus headache for 3 days too..Well the rest of my stay was seeing, Drugologist about Meds & told me to stop taking high blood pressure Meds I have taken for 2 yrs as they contributed to random tongue, throat glands & face swelling I had been having plus cannot have Voricanazole either after re action in May after 5 days & vision probs..I mentioned that in my last post I believe?
I also had probs with i.v locations & had it moved 4 times in 4 days..then a Staff Nurse suggested a longline I.v, which was new to me, but solved the problems & could move arm freely too..So after a wk l was already feeling so much better, plus Physio had issued me with a nebuliser & a pipe thing that is like blowing thru a straw & makes me cough, as I am unable to do sputum, i can't it's disgusting to me..but had to clear lungs somehow & coughing helps..After 10 days the antibiotics ended & I was started on Itraconazole anti fungal starting 2 days before my discharge, to see if I had re action as very strong, I have to take them for 8 wks & my Consultant came to see me again before I left & still could not give me proper diagnosis as it's complicated & I have to be re admitted on 8 April for i.v antibiotics again.. The Itraconazole is dose given 200mg twice a day for Aspergullosis?.. When I left hosp, I felt best I had for 2 yrs & not getting out of breath & appetite back, the good food saw to that too..I had lost another Kilo while in there too..but eating well from first wk..I came out on 14 Feb with a new nebuliser to use 2 times a day, but so much salt I have only been using once as my BP high again & salt can't be helping? But been so much better,feeling normal !! have to have blood checked every couple wks the Consultant said, because these anti fungal can cause Liver probs or failure!! I had to ask my GPs reception twice about that & then go in & ask again before they checked with a Dr & she said have it done in 4 wks? By which time I will be back in The Brompton?? So I saw the better Dr in the practice & had them done last wk..results ok..Problem now is I have been getting very breathless again for over a wk now & although I have been eating lots better, I have lost 5 Kl since being home??
Well that's all folks, sorry another book, but I only check in every few months..
Hope everyone is as well as can be expected...love to all...Sandy xx