I am not trying to prove them wrong But!

I have a habit of looking into my conditions which seem to be growing? I tend not to look at the sites that make all sorts of claims to cures and the next thing to hit the streets. But at sites aimed at the clinical arena. The main problem is they use all these fancy names that take time to look up to only find they mean a cough or SOB? So a short information page can drag on a bit, but with all things the more you see the offending medical term and know what it is you get though the next page a little quicker.

I was in ICU in 2008 with a major infection and lung failure. It got to a point were I had Empyema (an infection that spreads from the lung. It leads to a buildup of pus in the pleural space. ) In my case it was in excess of over 1.5 cm covering the entire lung. They kept testing me to see what would kill it and reduce this to help me breath but it was not playing to their rules and would start to die and then fight back to the AB they were trying!

It was decided the only option left to them was to send me to another hospital under police escort for a Decortication (a medical procedure involving the surgical removal of the surface layer, membrane, or fibrous cover of an organ. The procedure is usually performed when the lung is covered by a thick, inelastic pleural peel restricting lung expansion.) So once I was there and being assessed the thoracic surgeon decided that as the infection has took such a hold it would be fatal to attempt it. I was moved to their critical care unit and was installed on an Oscillator (high frequency oscillation compared with conventional ventilation in patients with acute lung injury/acute respiratory distress syndrome (ARDS).) this came with a 50% survival and I was on it for 10 days. One of the problems is the lungs are more or less kept inflated with more pressure to the damage part of the lungs. The advantage is it will force air to the lungs were a ventilator would not, Ventilator would of given me 0%. After 10 days they put me back on a high pressure Ventilator and sent me back to my original hospital. Second day back there and I had to have 6 units of blood as my lungs started to bleed badly.

My consultant that kept me alive and saw me until he discharged me 2.5 years later Went though the stages of the time in ICU and hospital. He fully explained that as the Empyema and fluids took over 2 years to dissipate I have scaring to the pleura space. The whole time I was in there they kept asking had I been in touch with Asbestos and told them wrongly NO! when he discharged me his closing words were "It has been a pleasure dealing with you, you proved me wrong so many times by not dying! I am sorry to say we will be seeing you again at some point!" He has now retired :(

Now to my headline statement I have proven I have worked with asbestos for over 10 years with no safety equipment. It has been documented a number of times on medical papers that fibrosis on the pleura does not show up on xrays. They have based there decision on a 2010 xray which shows the pneumonia I had at the time? My cardiologist at the same hospital I had the Oscillator at confirmed that I have permanent damage as a result from reading my notes the lung consultant sent him? the CT scan I had in 2008 also shows the empyema and I have not had another since to see if there is any difference. They agree I have RLD generally caused though fibrosis and PH but insist that as it is not on the old xray and cannot see it, it might not be there? Do I start to compile all my evidence and get them to answer it? Time constraints would be a good excuse for them not reading it?

Sorry for waffling.

1 Reply

  • The are full of it offcuts .. Procedure you had was to excise meso from outer edge of lung do all sorts of stuff with plaura from talc to remove parts of it.

    I would have chat to solicator as clock starts from diagnosis

You may also like...