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Lung transplant accessement

Michelle12120 profile image
23 Replies

Got my date for my 4 day lung transplant accessment. It's 23rd February. They told me last week it would be April before I was going back up there. But my consultant in nottingham has spoke to them and brought it forward. As I'm now really struggling with my breathing

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Michelle12120 profile image
Michelle12120
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23 Replies
sesh123 profile image
sesh123

Thats grear news Michelle i see my consultant next month to see if i can go on surgical list, good luck x

Michelle12120 profile image
Michelle12120 in reply to sesh123

Thank you and good luck xx

all the very best Michelle - great news :)

Michelle12120 profile image
Michelle12120 in reply to

Thank you xx

Jolyn profile image
Jolyn

That's wonderful news Michelle...wishing you well. xxx

Michelle12120 profile image
Michelle12120 in reply to Jolyn

Thank you I just want my life back xxx

butter-fly profile image
butter-fly

My nephew had a double lung transplant just over a year ago and he's never looked back so I'm delighted for you Michelle. Life will be so different and you can enjoy it as you are meant to. 'Til then look after yourself. Sara xx

Michelle12120 profile image
Michelle12120 in reply to butter-fly

Thank you I'm so looking forward to getting my life back. I'm only 39. What hospital was your nephew in xx

butter-fly profile image
butter-fly in reply to Michelle12120

He was in Harefield Michelle. xx

Michelle12120 profile image
Michelle12120 in reply to butter-fly

I'm going up to Newcastle I live in nottingham. How does he find all the anti rejection drugs xx

butter-fly profile image
butter-fly in reply to Michelle12120

He didn't have any problems with them at all but he was a bit naughty at first and missed taking them a few times. Which is not good! He very quickly found out that they are not to be messed with.

I've heardgood things about Newcastle. xx

Michelle12120 profile image
Michelle12120 in reply to butter-fly

That's what my worry is if I forget to take them. I went up there for my one day accesment they was lovely people. I just want my life back I'm only 39 with 3 kids xxx

butter-fly profile image
butter-fly in reply to Michelle12120

Not to worry. If you do forget them occasionally you won't die! But you will begin to feel the effects if you become careless. And typical man he was being careless. He was 56 by the way when he had his op. No problems at all.

You'll be fine sweetie. Just look after yourself.

Sara xxx

Michelle12120 profile image
Michelle12120 in reply to butter-fly

I just find it all scary but I know the transplant will give me my life back. How long was your nephew in hospital for xxx

butter-fly profile image
butter-fly in reply to Michelle12120

He was in hospital two and a half weeks but the aftercare is excellent. They will really look after you. After all you are a big investment! xx

mattcass profile image
mattcass

Hi Michelle12120. Great news for you there are people here who have been for the same tests you are going to have and there are others on the transplant list for and I'm sure they will share their experiences with you, I met my respiratory team in Edinburgh 2013 to discuss me going on the double lung transplant list but was put on hold for the time being as I have Rheumatoid Arthritis as well and because it was the RA that too half my Lung space it may still happen, Good Luck Matt

kimmy59 profile image
kimmy59

That's brilliant news, good luck.

Kim xx

Dedalus profile image
Dedalus

That's fantastic news for you - hope all goes well - good luck x

FarmerD profile image
FarmerD

Hi Michelle,glad to hear things are progressing for you.I,ve just been told transplant is the next plan for me,if the rest of my old body can take it,just about to start preliminary tests.I wish you the very best of luck for the 23rd,please let us know how you get on.Regards D.

Offcut profile image
Offcut

I wish you the best for your new better beginning!!!

Nanny49 profile image
Nanny49

Such good news - hope all goes well for you, Michelle.

Michelle12120 profile image
Michelle12120

Thank you everyone I just want to get on the active list. And get some new lungs and have a life I'm only 39 and hooked up the oxygen 24 7

jackdup profile image
jackdup

That is good news and I wish you the best of luck in the assessment and hope you are eligible.

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