Burning feet

[rubyred777]

Good day everyone,

Hope everyone is well.

I'm wondering if any of you have experience with burning feet at night.Not so much burning, just hot. Even my hands also. Got any ideas on this?

Thanks

Rubyxx

[JuneCov]

Hi Ruby, yes I have similar problem every evening when I sit down my legs from the knee diwn and my feet feel as if they are burning, yet if I stand up and walk around I don't feel anything at all ! In bed it's not as bad and I can sleep

[jeanielee in reply to JuneCov]

Ask your doc for blood tests you could be low in vitamin b12

[stilltruckin]

webmd.com/pain-management/b...

[jimmyw123 in reply to stilltruckin]

its now past 4 15 am, been in bed , cant sleep a wink my foot/lower leg, ankle/toes are red hot, very painful.completely numb yet agony.

most annoying to say the least, this has went on for some time now, cant find an answer in your link

stilltruckin , apart from the medication it mentions 300 mg of pregabalin [ lyrica ] which is proving useless,

i had an mri scan week past monday, have an o/p appoint 10,30am this monday at the rheumatology.[i hope to get this mri result] cant go on like this .

my breathing is bad, i'm coughing up lots of phlegm, i have 4th stage copd [on oxygen] also have ankylosing spondylitis. g.p reckons this pain is coming from my back.

i,e clumped or bunched nerves at base of spine possibly causing cauda equina

printing this as i am utterly fed up with this, i try to be cheery on the forum but these are the bits no one sees.

i feel lousy with this pain. and believe me it is not mild pain, it is severe pain.i have a catheter bag on, i have loosened all the strapping, not helping one iota.

i'm an oap live on my own, so no one to scream or shout at, probably a good job. so venting my feelings on here.

so annoyed at myself took mouthful of oramorph, i have pain patches on fentanyl 75 mcg , took two dihydrocodeine, twice 2 at 12 midnight, 2 just now. 2 diazepam twice same times, i take all the usual meds nebs etc for the copd, also water tablets 40mg twice a day, also ramipril for some heart condition. senna for constipation which the painkillers cause.

phlegm cleared slightly after using nebuliser , both salbutamol, and saline breathing slightly better,,, but the pain is just as severe

as far as im aware i dont have diabetes [i,e your link] i don't smoke, and never drank for 15 years [i.e your link]

will have to put up with this until i hopefully get the results of this mri scan on monday, thats if the rheumy has got it.

but how miserable pain can make you, anyway least ive got that off my chest, its now 4. 30am, my carer calls at 7.30 hes useless, just puts my socks on and trousers over my ankles,[can't bend to touch my feet ] then makes me a coffee, i suppose i should be grateful,

will try get through to kitchen make cup of tea,sorry to sound so miserable as you all know its very unlike me, sorry to burden you,,,,,,

jimmy

[mustcarryon in reply to jimmyw123]

Oh jimmy, my dear friend and crime fighting partner. I just don't know what to say. Here I am the other end of the country from you and feeling pretty helpless that I can't help you. All I can say is that myself and others on the site love you and are sending you our very best wishes. Good luck tomorrow with your appointment. Please let us know what they say. xxxxx

[Hidden in reply to jimmyw123]

Jimmy, although I don't post regularly, I so enjoy reading your own posts and so I feel I want to reply to you. You always try to be positive and cheerful, yet you are obviously struggling with your multiple problems. Please don't ever apologise for "sounding miserable", it may not change anything to have a moan but it can really help, just to write it all down. I personally don't have the dreaded COPD, but I have a husband who has COPD plus heart, circulation and other issues. Like you, he tries to put a brave face on everything but sometimes he just has to get it off his chest. We all feel so helpless but really want you to know how much we feel for you. If I had a magic wand, it would be banging on your head as we speak, to make you better.

[Hidden in reply to jimmyw123]

oh jimmy its times like this I too wish I lived near so you could vent at me personally - lifes a bummer aint it sometimes. I can't imagine the pain but really hope they can do something to ease it.

[juney_99_antique in reply to jimmyw123]

Oh Jimmy, you are expressing the emotions that most of us don't mention but don't feel bad about this! Lots of the time I don't say on here half of what I am feeling as there is a thought in my head, and you obviously have it too, that we just don't want to burden people! However, you can burden me as much as you like as I know exactly how you feel! I also live on my own and am fortunate that, at the moment, I don't need a carer! The whole of the caring business is exactly that "a business" and without us oldies they wouldn't be needed! Then they would be out of a job! However, that thought would never occur to them! I feel that people who have carers should have someone they can approach and say "I don't want that person"! I really feel for you at the moment as I have some idea of what you are going through. We just need to stick together and know that we are all here for each other! I know that isn't much help with how you are feeling at the moment but please know, I understand. Take care. Love Juney

[Offcut in reply to jimmyw123]

Oh Jimmy! I feel for you and wish I could offer a solution? There is nothing worse than reaching the point you cannot control the pain out of the mind. I hope the PMA Jimmy is back soon?

Be Well

[england in reply to jimmyw123]

Hello i hope you get bit better prob worse when on yer own at home know one keep yer cump

[stilltruckin in reply to jimmyw123]

Cannabis has a reputation for easing pain that other drugs can't touch. A whole extract including the THC would be best, but unfortunately that would be illegal in this country (unless you have MS, in which case you could be prescribed Sativex: mstrust.org.uk/information/... )

However CBD (cannabidiol) oil is legally available and may prove effective. No guarantees, but it can't hurt to try . . . amazon.co.uk/s/?ie=UTF8&key...

[butter-fly in reply to jimmyw123]

Just saw this Jimmy. I am so sorry. When I PM'ed you a while ago I though you were getting better.But of course the condition can flare up and worsen any time. I echo all the other replies and wish there was something I could do. Alas there's not much any of us can do except try and give you all the moral support we can. Are you still getting the mighty Raj in the mornings. Not much to look forward to then!

Roll on Monday when you might get some answers. Meantime Jimmy, take good care and feel free to rant and rage as much as you like. You have good reason to 'ol buddy.

Sara xxxx

[rubyred777]

Hi Jimmy,

You are on my usa schedule. It is 12:00,

Midnight here. I'm so sorry your in so much pain. I wish there was something I could do to help. I just have the bottom of my feet very hot and the palms ofy hands. Not always. Maybe I had a fever or something.

I take gabapentin , which is like Lyrica, for sciatica. I was getting pins an needles in t h e back of my legs . I could barely sit down.Went to chiropractor and all kinds of stuff.nothing helped. Started taking just 300 mgs. Gabapentin and I'm good to go.

Wish it could be that easy for you. Talk all you want. I'll be up for hrs. Yet.

Rubyxx

[butter-fly in reply to rubyred777]

Hi Ruby, I have had this condition since my early twenties and used the cold floor in my kitchen to cool my feet at night. Now in my sixties I have Gabapentin for back problems and that helps my feet enormously as well. Doesn't it help with your feet?

Sara

[jimmyw123 in reply to rubyred777]

so sorry to butt in on your post ruby, i do hope you feel better,

meanwhile i thank you all for your concerns, i slept from 9am until 12, this pain has simmered down slightly now,,, but be sure i will be having a real word with that rheumatologist tomorrow. i will answer all your posts later, meanwhile i'm going to take it easy today,

i genuinely thank you for your concern,

lots of love jimmy xxxx

[Hidden]

Hi Ruby, good day to you. I have cold feet all day, but by late afternoon/eve they are really hot, have to sleep with them out of the bed covers, then wake up and they are freezing, so the whole cycle starts again!

Love Kin Xx

[rubyred777 in reply to Hidden]

Thats me too ! But why? That is the

question. Your up late. Watching the telly? Xx

[Hidden]

I've no idea Ruby, wish i had! No i'm not up late, i'm up early, usually am. But in England, sorry i know you live abroad, but can't remember where. Xx

[rubyred777 in reply to Hidden]

New jersey usa. 12:45 am here.

[dlsmith]

A Burning sensation is usually caused be a pinched nerve. I would suggest a Atlas-Orthogonal Chiropractor. Some time referee to as Upper Cervical. This particular Chiropractor has several more years of training over a traditional Chiropractor.

[Hidden]

Ah i bet that's lovely. Freezing in Suffolk at the mo, its now 5.45am but been up a while, i enjoy the peace of early mornings! Xx

[mustcarryon]

Hi Ruby. I suffer with burning feet. It's awful, and worse when I go to bed, I have to put my feet out of the bed. I don't know what causes it, I wish I did.

[btown]

Hi Ruby, I have peripheral arterial disease and suffer from very hot feet at night, unfortunately there seems to be no cure for this its all to do with circulation and messages to the brain, I generally dont wear anything on my feet, this helps a little, I use the stone floor in th kitchen to cool down my feet or sit outside with nothing on my feet even in winter. Keep bedroom cool and sleep with my feet stuck out of the covers, sorry I can't offer any other help its very wearing sometimes I am awake at all hours but just have to put up with it.

stay cool Trevor ♡

[DoghouseDave]

I to have that problem and have to have my feet hanging out of the bed at night. Told the doctor about it and he seemed disinterested but he prescribed B12 injections. Still have hot feet !!!!!!

[Hitchcock]

I agree with btown re possible PAD. I'd also rule out gout.

[doublecee]

Hi Ruby, It would appear that Hot Feet has two possibilities.

1. it could be that your circulation is not all it should be.

2. It's of no serious consequence.

2 is most likely. just make sure that you have a good pulse in the vein running down the

front of the foot.

This was my G.P's diagnosis some 12 years ago.

Cheers.

[rubyred777 in reply to doublecee]

So hows your pulse in your feet?

Should be the same as your wrist. You can actually use your oximeter on your toe! A bit tricky but it works

Rubyxx

[doublecee in reply to rubyred777]

Hi, I have a very good pulse in my feet. Just have to grin about the heat.

have a new Respiratory Nurse at my G.P's. Saw her today for my annual check-up.

Said she was pleased with the way things are going but was a little reticent with the figures. However will find out when I go back next month.

Spoke to her about Eklira Genuair. To my surprise she pulled one out of a draw. Showed how it works and got the G.P to prescribe there and then. Will keepyou up to date on my progress.

Her final comment was "nothing to worry about".

Take Care,

Cyril.

[Polly4acre]

Ruby, this burning affects me also, evenings when I sit down are the worst, itching, burning, painful too. even the backs of my hands burn. I did make the mistake of scratching my instep and now the skin is broken and won't heal.

At night, like you, all the bedclothes are off until I feel frozen and the on, off again until I get out of bed to walk about. I am lucky to get three hours rest all told. I have arthritis in both hips, swollen veins to my left leg and diagnosed C O P D in June of last year.Have had this burning problem for about 6 weeks now, with gastric reflux if I lie flat.

It is so hard to have a positive attitude with all this going on and I dare say that you feel the same way. I live in hopes that this will clear up as quickly as it began. meanwhile, my sympathies to you and others who have this problem.You are not alone with this! Best wishes.

[rubyred777 in reply to Polly4acre]

Back again

I see you havent been a member to long. Whats your stage of copd? Do you know your fev1?

Take care

Rubyxx

[Polly4acre in reply to rubyred777]

Hallo again Ruby,

I don't actually know what stage COPD I am at, I asked the Respiritory Nurse at our surgery and she told me that I was better than predicted but the stage was not significant as this thing can change from time to time.my Doctor told me, when I asked her, that the letter from the Hospital Consultant was quite sketchy.

I have only had one FEV reading but was not told what it was. I gather from that that too much information was not needed. I am fine with that knowing that should there be a change I would recognise it for myself and could act accordingly

I have my bloods tested regularly, no sign of Diabetes.I go for breathing tests again in June of this year, whch will 12 months since the first. How life changes so suddenly! I have gone from doing eveything to doing almost nothing.

Thank you for being in touch, keeps as well as you can, regards.

[rubyred777 in reply to Polly4acre]

I dont tend to agree with that.I have copies of any tests I get done. we're just a # to drs. You have to keep track of things yourself. Ask questions and know whats going on. I've seen too many times drs. Didnt do something they should have.Actually a couple of them are on this site. I'm guessing your not mild if you can't do alot of things you used to do. To each his own.

You would rather not know.

Thats the way my mom is. She doesnt ask any questions. Has no clue whats going on.Anyway, I was just expressing my thoughts. Hope I didnt offend you.hey you take care,

Rubyxx

[Polly4acre in reply to rubyred777]

Thank you for your comments, Ruby.

people deal with their conditions in their own way, it is what helps them to cope. My loss of some ability is down to worsening arthritis and not completely down to a lung problem. The things that I can physically do I pace myself at, and if I do get a bit puffy it soon settles down with a short rest.

I am quite confident in the knowledge that I know that I can access information should I really need it or even buy equipment to monitor things myself. I really don't care to go down that road, as a retired Health Service worker I am so aware that people can become totally preoccupied with their personal problems health or otherwise, to the exclusion of getting on with life.

I keep my inhalers etc. out of sight to others, and only when it is time to use them do I become aware of what is wrong with me. that is not to say that I really feel for others in the same plight, pain, oxygen dependent, trepidation and all the other things that have to be coped with. This forum is very helpful to them and the support, fantastic!

My G.P. has sent swabs off from my foot, results soon. To everyone , my best wishes, regards to yourself.

[rubyred777]

That doesn't sound good if it doesn't heal.you dont have diabetes do you?

I dont have pain or anything . Just the bottom of my feet are hot. I'm going to start taking B-12. Cant hurt anything.

Can't believe no one is coming up with any solutions for us.

Rubyxx

[Hidden]

Morning Ruby!! I care for my husband who has severe COPD BUT I have dreadful hot feet at night - really bad that keeps me awake. Actually my mother in law who did have COPD always complained too! I heard about the Vitamin B12 and that seemed to help but I read about taking SAGE and that has helped quite a lot. They are still hot but at least I can sleep! It might be worth asking the doctor for a blood test? Take care and please if you hear of a brilliant cure, let me know! Lots of love TAD xx