I have just spent the worst 2 days of my Life with my RA severe pain in my left wrist and fingers spent most of the night walking around my town on my own even Indy did not want to go out mind you it was 3am, That was with 2 Morphine based meds and Dihydrocodiene 90mgs no point of going to A&E they would just give me morphine and send me home, God I hope I sleep tonight tomorrows another day.matt
Worst two days of My Life.: I have just... - Lung Conditions C...
Worst two days of My Life.
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mattcass
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Severe pain can be so demoralising, matt cass. Think you need to make a "fuss" with the GP. Obviously the pain management isn't sufficient so you need to sort that one out. Shame the good ones can be constipating. Does keep the arm raised help? Wish
poor you hope you feel well soon but keep safe while you are out at that time there are a lot of people out there who are not nice x
Hi Mattcass,
I totally sympathise and empathise with you, as I am having to deal with chronic severe and at times excruciating pain. I don't know your circumstances, but I have been referred to the pain clinic which is turning into a more positive and helpful experience than that offered by my GP. I am not sure if you have gone down that route yet, but if not may be worth asking for a referral as they have a whole team of specialists on hand to help. Sorry if you have been there and not getting anywhere, but it may be worth a second visit. I have found they spend a lot more time with you, and luckily the consultant I see is very understanding and listens, and you can even phone in between appointments and treatments if there are problems and the consultant will phone back.
I have had flare ups like you did and like you, didn't want to go to A&E, but now wish I had. I will not let myself get to that stage again, as its just not worth it in the long run. It is so exhausting and debilitating, and maybe they could give you something stronger for emergencies.
Hope you can get something sorted out soon.
Take care,
hugs from Huggs xxxx 
ps A pain specialist physio may also be of value, as they have a different way of dealing or helping you manage chronic pain.
Hi Mattcass, so sorry to hear you are in so much pain and hope you start to feel a little better soon. Ruth x
Dam it MC, I wish there was something we could do to ease your pain. My breathing has gone to pot and I'm blaming the weather which is probably not helping you also.
I think we should fly south like some birds do, it seems they have more sense than us eh' .
Tony
Hi Tony,
Sorry about your breathing going haywire. Over recent weeks my sats have been lower than normal, and I too was blaming the low pressure weather system, as I have heard of a fair amount of people having similar issues. Hope yours gets sorted out double quick.
The cold and damp affect so many conditions so maybe the birds have the right idea. Mother Nature is far wiser than us.
hugs from Huggs xxx
It just that time of year again, like you my sats are lower than normal and I'm using more oxygen. My answer to this normally is to get out and exercise/walk to keep the chest clear but thats difficult with the temperature close to freezing.
I'm coughing up a lot more sputum to so I may pay my GP a visit to see what he thinks.
Maybe the NHS should send us all on holiday to a sunny place, this could save a lot of money and free up some hospital beds while we soak up the sun on the beach.
Hang in there Huggs, there's better times just around the corner, spring then summer are coming right at us yeh'
Tony xxx.
Hi Tony,
I do feel for you, as it so important for you to keep as fit as possible so it might be best to get checked out just in case you have an infection, and its best nipped in the bud. As you say the cold freezing air is not good, but I do love the snow!! I wasn't able to get out in it this time, and as we don't get a lot of snow here was a bit gutted at the time, but never mind.
Good idea about going on holiday with the NHS, but then we might struggle in the humidity!!
Yep, just hanging on, and hanging in Tony, that's all we can do. I do hope you get good news soon, and when your op is done there will be no stopping you. I wouldn't be surprised if you ran a marathon eventually!!
Take care,
nighty, night as I am off to bed now, as I have an early start in the morning as I have an appointment on the mainland.
Take care,
hugs from Huggs xxx
Oh Matt that is awful poor you. Pain is a terrible things isn't it? Is there anything the doctor can do? Are you going to ring up for an appointment tomorrow? I hope your pain diminishes and you sleep like a log tonight. All the best. xx
oh matt, i really feel for you, pain is just plain horrible, it knocks you right off,
i wonder if you would consider asking your rheumy for anti-tnf injections, these are biological injections,HUMIRA or ENBREL, i take them for A.S.. but they are really for R.A. They do help in the long term,
meanwhile i do pray this settles and you get some relief,
jimmy
Hi Jimmy I am waiting to be put on Biological meds just getting some tests done.Matt
I really feel for you Matt, my Husband used to suffer dreadfully with his. The steroids did the trick with him. He did get some relief. x
I'm not surprised that such mind bending pain is driving you crazy Matcass. I can't believe that the medics can't do more to alleviate it. You don't say whether you have been to the pain clinic or not but as Huggs mentioned they are the people who fully understand pain of all kinds of pain like no one else. I found them excellent in every way. Having to walk through the night to keep you sanity in the face of pain is not on and I feel you are being very badly let down. You'll have to make your GP to sit up and take notice!
Good luck Matcass and let us know how you get on.
Hi butter-fly that's me just walked for 4 very slow miles and feeling a wee bit better hope to get some well earned sleep. matt
I hope so too Matt. I also hope that later you will take the bull by the horns and make your GP sit up and listen. You are clearly not getting the help you need. Sleep well my friend. That's where I'm heading now!
Hi, I am so sorry about the pain that you are suffering. I have been reading again about the Vagus Nerve stimulator device that they have been trialling for R A ....don't know if it will become available for sufferers though.
It is a shame that you found no relief with acupuncture.
Take care.
So sorry to hear you are suffering...is there any reason you can't have a one off steroid injection. I had exactly the same problem & was given a jab & within 48 hours I had relief.
I know some doctors go on about bone density, but if they had the pain I'm sure they would want relief.
I do hope you get some help from the medics soon....Kathy
Hi Kathy thank you, I also have Idiopathic Pulmonary Fibrosis RA took away more than half of my Lung space Jan 13 they have not caused to much bother compared to my RA it's been a bloody nightmare recently. matt
severe pain can be so debilitating Matt I made a fuss with my doc and got on the pain releif team a specialist team that deals purely in pain and its relief they set me on fentanyl patches and never looked back
mattcass in reply to
Cheers Anthony will look into it. matt
Maybe not the the ideal solution but when I get continued days of pain that seems to give no release I take a sleeping pill. Which relaxes me and I still do not get a full nights sleep but I do get some deep sleep with some relief. I will never take any more than 2 in 6 weeks. I really feel for you!
Be Well
Oh dear Matt,so sorry to hear that.You really must see someone whom will listen to you,you can't go on like that.being in such pain,is very soul destroying.Hopefully some of the suggestions,by our friends may help.
Please do seek help,hugs Wens xxx
Am so glad i read your spot mattcass, i to have ra, its affecting my lungs quite severly,,, but nothing as bad as my right wrist and fingers,,have never experianced pain like it,, went to the Dr,s on Wed about it, he just gave me another steroid inj,,,this has been going on for months, and was wondering if it was something else,,obviously not,,,i have had no success with all the stronger tablets my rhumatologist has prescribed,,my body won,t tolerate them,,so much so he has written me of and won,t see me anymore ( he has no manners at all), am of to Poole rhumatology in Feb, to see if they can help,,so do understand what you ae going though,,,hope you find a solution soon,,,Chrissie
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