Hello one and all, I have found all your Posts so helpful, thank you. I am here for my husband, he has IPF. He has only been diagnosed since September. The GP just said you have growths on your lungs, come back if you get breathless.!! I was fuming,, I am a qualified nurse,Medical and Psychiatric. It took me a long time to get him to understand there was something wrong,he was in total denial. It has damaged his heart as well and he is having many tests. His CO2 levels in a 2 min walk round the Out Patients Dept is 89%. If he exerts himself his BP goes sky high. He always had very low BP, now on Meds but it is fine is he just walks, can't give him anymore Meds or it will go too low on resting. He feels no pain or breathlessness, he thinks he is fine and wants and tries to do everything as normal.!! I have known for years something was wrong, mostly because of his strange outbursts of abusive verbal behaviour. Especially after landing from Australia last May, when he tried to mow down a load of people with the wheelchair in which I was sitting. I have Post Polio and am wheelchair bound most of the time.
The consultant.......!! said he is quite bad, looking at his HRCT scan. He is with Cardiac Dept for his heart.
He did the 6 min stress test, he lasted 2min 5 seconds and they had to get him off as his heart rate went to 350. His BP 240/130.
Please, is there anyone else out there who feels nothing? I can track this back 10 years, 5 years pushing the wheelchair and complaining he sounds like Puffing Billy behind me. I stopped him pushing the chair 2 years ago, Except in emergency. I now have my NHS chair, wonderful, I am able to get out. But I can't lift it into the car, so HE does!!! I am getting ramps next week.
I feel I am becoming responsible for his illness as he ill not take responsibility himself. I have enough trouble managing myself and the home and cooking.
Its just, he does not feel ill, even when he is collapsed on the kitchen counter unable to get his breath. He just brushes it off.
He has NEVER been ill in his life, never even had tummy ache or a cold. He is 72 now.
His father died from IPF and we found out a few days ago that his uncle also had it.
Your Posts have help me understand more of what you all go through and that is so helpful. But how can a man get so sick without any symptoms? Kindest Regards Kathy