Good Day to all at HU.
I hope everyone is ok and looking forward to Christmas ?
Anthoer question from me as always, I will try to answer one soon, but I know nothing compared to you knowledgable people.
I went to see my Lung consultant yesterday armed with my Laptop and lots of questions I had written after doing my research, the first being how had I gone from having a clear CT scan two years ago to a CT scan that indicates both moderate Emphysema and Moderate Brochacaetais in this timeframe ?
His reply was you dont have(even though it clearly stated this in the notes on ct scan I read)
He said that my lung function is great and although it has a very mild obstruction indicated in the LFT he says its very mild copd if at all ????
What I dont understand is how he can contradict the CT Scan notes ???
He also has decided to take me off Azthromycin as I have no cough or mucus production. He has also reduced my Symbicort inhaler 200/6 to just one puff in the evening per day and told me to go back in 6 weeks.
He told me that I am imaganing COPD far worse than what it is and with the Lung Function test I what I have, coupled with the fact I no longer smoke and last night I ran a mile in 7.30 minutes that I should have a normal life expectency.
This goes agianst totally everything I have ever read in realtion to COPD. The disease is by no means a piece of cake as I have read from various people on this site who experience this illness first hand.
The disease will progress no matter what and once you have it thats it you are on a road of decline and it will just get worse and worse, all beit more slowly if you take care of yourself.
I so want to beleive him that I am going to be OK and that life will be normal for me, but I dont believe him and its not me being paranoid its just facts from everything I have read.
I try to take the positives, I e the reduction in medication is a good thing I can run well its a good thing. But I also know the make oxygen saturation hovers around 94-95% and drops as low as 92% sometines when I run it has hit 89%. My TLCO is 76% which indicates damage and problems transfering o2 and CO2.
I so want it to be true, but I feel that he is just making me have a positive outlook on life even though we both know its a lie and I will get worse.
Just wanted to get this off my chest, my wife is soo happy she thinks Im cured after listening to the consultant and I believe he should not give false hope to people and say what is not medically true.