Study on IPF

Have you had IPF for more than one year? Maastricht University and King's College London are conducting an academic survey on IPF. The 15 minute survey will ask you for your personal views and opinions and your answers will be anonymous - please click below if you'd like to take part.

A small donation will be made by Maastricht University to the BLF as a way of saying thank you for your time and effort. We’ll get more information about the results next year, which we will share online.

Thank you for taking part!

4 Replies

  • OK done!

  • I completed the survey but most of the questions seemed to have no relevance. Far too many questions about medicines agencies, one of which I had never heard of.

  • Thank you Alan and Huwie for doing the survey! I appreciate Huwie that some of the questions may not be directly relevant to you, and I will feed your comment back to the researchers. If you'd never heard of the agencies then I guess that will tell the researchers something in itself. Ruth, from the BLF

  • Completed the survey, but I think I might be a bit biased as it was the medication I was given for a UTI infection that gave me the IPF in the first place. Namely Nitrofuriantoin. Would like to know if there are anymore people like me who have this disease because of this antibiotic, which is still prescribed today.

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