Next Appointment PH

I now know that I need to go to the Royal Hallamshire for my next appointment on 9th December to check on my progress of the Pulmonary Hypertension. Him at home would be quite happy for me to go by myself yet again and just take me and pick me up from the train station. Why can't men understand that we women would like a little support sometimes and hand holding at times like these. Just hope the weather stays fairly reasonable. Bought the train tickets and just wonder what the Cardiac MR will reveal and if the Sildenafil are working or it it is in my imagination that I am worse than when I first went in August? Feel as though I get no support here either from hubby or from GP and Practice Nurse. It is obvious they haven't come across it before (only 6,000 to 8,000 people in the UK have it), but it doesn't help when questions are asked and I get no response, even though it has been promised. Hey ho, it could be worse!!!!!

7 Replies

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  • I think it is very sad that your husband doesn't provide you with emotional support with your health difficulties. I am fortunate in that my wife and I each regard each others health as at least as important as our own.

    I hope the hospital news is not as bad as you fear. Rib

  • Hi, it took a while for my husband to realise that I needed his emotional support at hospital appointments. I am sure your hubby is not deliberately being unkind and he will realise your needs in time. I also have Pulmonary Hypertension and the Royal Brompton is trying to find a drug to slow the progression of the illness. Sildenafil can be taken at 50mg as well as 20mg, so this may be an option for you. They also have other drugs they can try if the Sildenafil isn't working. So please don't worry.

    Kind Regards

    Mandy

  • Oh! I know how that feels! My son will (if forced) drive me to the hospital, but would never come in and would go home and I would have to text him when done and get him to drive back and get me. Last time that happened I had had one of the worst days of my life and he yelled at me all the way home because I had rather mucked our system up.....I couldn't believe how he reacted, so I will never ever ever ask him to take me again. He has his own issues, so I am not going to criticise him, but he honestly doesn't know how much that hurts emotionally. Ah well - it's a "man thing" I think (that's 'cos I haven't had a man to lean on for over 30 years so I tend to say that.)...just so the male readers are not going to take offense. :p Does your husband read these posts????????....you take care and know it isn't just you this happens to.....join the crowd! (not that that helps, but at least you know you aren't alone in

    this) :) ho hum :)

  • Thanks Louisiana, I too think it is a man thing as we women do tend to be there whenever we are needed. I am so used to going to these things by myself that it is just once in a while I do like him with me but I have always been independent and his work meant that he couldn't always be there so now he plays a bit on it. But we soldier on.

  • Hi, I am sorry you are not getting the support you need. Sounds like he needs a good talking to. My wife is by my side all the time and does everything for me. I have Pulmonary Hypertension and Pulmonary Sarcoidosis. I am on oxygen 24/7 and am sorry to say that I need a lot of looking after. I hope your hospital appointment goes well and you get good news (we all need that).

    Good luck

    Paul

  • Hi, I am sorry you are not getting the support you need. Sounds like he needs a good talking to. My wife is by my side all the time and does everything for me. I have Pulmonary Hypertension and Pulmonary Sarcoidosis. I am on oxygen 24/7 and am sorry to say that I need a lot of looking after. I hope your hospital appointment goes well and you get good news (we all need that).

    Good luck

    Paul

  • Thanks Paul. I know how you mus be coping as my husband's cousin who he is close to, has PH and emphysemia through farming, he never smoked a day in his life, and he is on liquid oxygen 24/7.

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