I have just found this community and don't know whether I belong to this one or not. I have Limited Systemic Sclerosis which has now progressed to Pulmonary Hypertension. There aren't that many in this country that suffers with it, only around 6 to 8,000 in the UK. It affects the pulmonary artery which narrows and consequently the heart has to beat harder to push the blood through to the lungs and the lungs into the heart. I am finding it difficult to find any exercises (beside walking) as my local nurses who help to organize things like this have no knowledge of pulmonary hypertension so don't know where to send me safely. Is there anyone out there who could help? The nurses don't seem to want to help until I go back to see my consultant at the Royal Hallamshire in Sheffield and have told me not to do any exercise until they have received the results of this next visit
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