Your views on IPF care - in your area

Hi All,

We are writing a major idiopathic pulmonary fibrosis (IPF) policy report that will be launched in parliament early next year. It aims to provide a comprehensive overview of services for people with IPF across the country.

With your help, we will highlight regional differences in care quality, share best practice and develop recommendations for the NHS and the Department of Health, so we can encourage them to drive improvements for all people with IPF, their carers and families.

This anonymous survey will take about 15 minutes to complete and is open to anyone in the UK with IPF*. As a carer or family member of someone with IPF, you can support the person you care for by answering the questions on their behalf.

blf.org.uk/Page/Your-views-...

Thank you very much for helping us. Together, we can make a difference.

Ruth , IPF Project Manager, BLF

4 Replies

oldestnewest
  • hi is this same survey as we did a couple of weeks ago

  • Seems like it as it will not let me do it.

  • yes it is same, think we need to let BLF know, or maybe its up again as a reminder for those who have not answered it yet.

    Wish some of questions had been more clear to answer as question 1 asks who is doing survey, lm in other

    tick box, maybe it should have said spouse, family, carer, e.t.c rather than other, but it also was not clear how to respond or readily answer most of said questions as the "other"

  • Hi All, Thank you, yes it is the same survey, I should have made it clear that it was a reminder, in case some people didn't see it the first time. Thank you very much for filling it in! And thank you for your feedback. We'll take this into account next time we do a survey. All the best, Ruth from the BLF

You may also like...