Thanks

Letter arrived this morning from my G.P.s surgery. I will be allocated a named G.P. also a named care co-ordinator. See how it develops. Would like to say a huge thanks to all the people on this site. You are amazing. Mandy you are a star. xxx

[Suzy6]

Sp pleased brooke. you sound much happier. Stay with it we are all behind you encouraging you on. Yep Mandy is a star. xx

[Hidden in reply to Suzy6]

Thanks Suzy you are also a star xx

[huggs]

Hi Brooke,

Glad you are getting the help you need and its about time too. I agree with you that both Mandy and Suzy are stars. Hope all goes well for you.

hugs from Huggs xxxx

[casper99]

Pleased to hear your going to get some proper support at last Brooke. I know how lonely it feels to be screaming inside for help and there is none. Hopefully, this a turning point for you. x

[Hidden]

Oh that is good news Brooke. Hopefully you will get some continuity now and proper help. Onward and upwards Bev xx

[Hidden]

That is great news Brooke,we will all be cheering you on xxx

[Hidden]

Hi Brooke that's good news, I'm really happy for u, keep us posted, where are all here u. X sonia x

[hufferpuffer]

Hi Brooke I'm so pleased that you are getting the care you need, I hope you get a great doctor and co-ordinator, and I think you are all stars,the very best there is!! huff xxxx

[Hidden]

we are all stars

[Hidden]

wonderful news

[Toci]

Well done, you! Big pat on the back. Stay well, sweetheart. x

[Tazzy2]

Fantastic news and about time

[longlungs]

Hi Brooke so sorry to hear youve been so low again,I havnt been around for the same reasons,fortunately Im lifting out of it now and really hope you will too very soon,as you know it shall,just hang on in there especially now you have someone allocated to your case.As you know theres a lot of people here that really do care how lucky we are to have found here,so much support for one another.Keep talking and sharing.Hugs and cudds Janexx

[Nikkers]

Hi Brooke,

I got one of those letters last week and didn't quite understand why? As I already had an appointment with

my GP that day, I took it with me and asked him about it.

He told me that this is one of the best moves that the Government have made in many years for people with chronic lung problems.

It's a list which the people named on it (like yourself) will have priority for hospitalisation over lesser cases and access to new treatments that are available. All of your health records will be listed with hospitals and heath organisations so any treatment that you need can be assessed quickly and accurately. Your GP and co-ordinator will work together and it will help them detect any change in your disease and to offer you the best treatment faster, should you need it.

[Hidden in reply to Nikkers]

Thanks Nikkers for explaining things. Know what to expect now.

[barnowl1 in reply to Hidden]

Great news, hope our feel more relaxed now. Best wishes barnowl

[dukes in reply to Nikkers]

Yeah, thanks for that, Nickers, I got one too after seeing my nurse but didn't know what it meant for me. Knowledge is power !

[barnowl1 in reply to Nikkers]

Hello Nikkers, just read your response to Brook12. Do you know if this includes all stages of cope? Just wondering if I should expect a letter. I think I am around 50 but not sure. Best Wishes barnowl

[Nikkers]

Hi Barnowl,

To be honest, I've no idea, It just came out of the blue! Maybe it's just for poor old fogies like me? Lol. But if that's not correct I'm sure someone on here will know. How come you don't know how old you are?

[cofdrop-UK]

Not sure if this is the same thing but I received a letter and a breakdown of all my ailments, dates, drugs, allergies, surgeries etc. I was requested to amend where I thought there was an error (and there were and I did). I was also asked to agree to only medical establishments having access to this info. I made enquiries to ensure this was not the care. stuff, which I had refused at the time! It is not - it is a government thing apparently where each surgery decide on the 2% most likely to have unplanned hospital admissions.

You have a named doc (which I already thought I had anyway) and I also now have a named nurse, which happens to be the one I really like who always supplies me with mc&s forms, pots and labels. She will now contact me every 3 months or so and I can 'phone her and just tell the reception I am one of the 2%. She feels I should have a matron but I don't at this stage and would prefer to still see her and she is fine with that - we can arrange that at a later date if we feel the need.

love cx