New BLF IPF Survey

Our new IPF survey is now live and we really want to hear about your experiences of living with IPF and the care you receive in your area.

Your input would help highlight regional differences in care quality and would help us discover what improvements need to be made for IPF patients, carers and families. Your responses will be used to help us write a major policy report that will be launched in parliament next year.

We had such a tremendous response to our online survey about the proposed NICE quality standards for IPF, and we’d be really grateful for your help again this time! The survey is anonymous and takes fifteen minutes to complete, find out more here.

4 Replies

  • Done!

  • all done

  • Nice have loads of standers .. Yet most Health Profesionals dont even follow them

    And when the wheels come of ya ride and you cofront them the say o the just guidlines

    Then you stood there catching flys with ya mouth open ... Thinking O that explanes it then

    Yep all have to remmber to tell my lung disease

    Anyway am not nocking work BLF do as have seen and yep every one of ya and even moderators are pricless

    It's comfort to know some care and will fight our corner when where not up to it our selfs

  • Thanks All for completing our survey, we really appreciate it. Hopefully this will help us raise awareness and improve standards

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