Feeling isolated

[Jules-55]

Hi everyone, im new to this site had surgery for lung cancer 12 weeks ago and still recovering, feeling isolated !!

[Hidden]

Hi Jules and welcome to the BLF site patients side you will get plenty of tips have some fun (we are like one big family on here) but one thing now you have taken the step don't be lonely any more I know the big 'C' can be daunting I lost a brother and sister to it. Is the surgery you just had part of the treatment to bring it under control by removing a damaged portion of the lung and do you have other treatment to follow (such as chemo or radiotherapy) let us all know Jules keep in touch now you made the first move and all the best for the future. Px

[Jules-55 in reply to Hidden]

Thanks for the welcome, had half my lung removed but thankfuly dont need any follow up treatment its good to be able to chat to others that have been through a simalar thing !

[Hidden]

Hi sorry to hear or read about ya C

Yep you landed at the right site YUP friendly bunch on the hole but we all have our moments

Always someone around to chew the cud with

Hope ya recoverys going well cheers all the best

[Jules-55 in reply to Hidden]

Thanks stil find it hard saying the word cancer ! Its realy hard tryin to chat with family an friends aswel as they dont understand what youre goin through.

[Hidden in reply to Jules-55]

Jules have you had any input from the McMillan nurses at all? They are so helpful in getting you round to speaking with your family and friends about cancer and don't you believe it your mates would have developed some idea about what you are going through it is with them a fear a fear of the unknown so nice you replied. Just hang on in there when doubts and fears come jump on here to chat about whatever you want.

[Pentreath Volunteer in reply to Hidden]

Great idea to contact Macmillan if not already in touch. My husband died of stomach cancer 6 1/2 years ago and the Macmillan Nurse was fantastic and gave a lot of support to both of us.

[Pentreath Volunteer in reply to Hidden]

Great idea to contact Macmillan if not already in touch. My husband died of stomach cancer 6 1/2 years ago and the Macmillan Nurse was fantastic and gave a lot of support to both of us.

[casper99]

Hi jules - 55 and welcome. Sorry to hear you've had surgery for Lung Cancer but I hope it was successful.

You don't need to feel isolated now you've found us, there are other members who have been through the same as you. I have COPD, so don't know much about your particular situation but there are people on here that have been through the same as you and also others with other forms of Lung Disease who are all very supportive of each other.

Stick around and there will be plenty of other members along soon to meet you, who are more knowledgable than me. You'll soon find you don't feel so alone.

Casper

[Jules-55 in reply to casper99]

Thanks casper realy nice to hear from other people that understand what we go through wether its cancer or any other lung disease.

[casper99 in reply to Jules-55]

Your welcome Jules - 55. That's the best thing about on here, there are a lot that live on their own and a lot like me that have family but, we often don't want to alarm our family or cause them worry so, we tell each other on here what's getting us down and it gets it of our chests.

[RibvanRey]

Hi Jules. That is usually someone around on this Community. Whether you want a natter about what to wear today or help with meds, feel like a jolly good rant to let off steam or are able to help out others or need advise you will be hard pushed to find a better place to come. Welcome aboard. Regards Rib

[Jules-55 in reply to RibvanRey]

Thankyou ! Already feeling better knowing i have others to chat to.

[Hidden in reply to Jules-55]

hi honey welcome to our family x x x x x x

[Jules-55 in reply to Hidden]

Thanks mandy not sure what to do next, am trying to think of questions to ask ! What type of lung condition do u have ?

[megannell]

"Hello Jules, and a big warm welcome to you, I am fairly new here myself and living alone I felt so isolated But! everyone here is so warm and so welcoming I am sure you will like me feel that your now part of a new big family...Megan"

[Jules-55 in reply to megannell]

Thanks megan, do you mind me asking you what condition you have ?

[megannell in reply to Jules-55]

"Hello Jules,

I have stage 3 COPD, I was diagnosed 4 months ago it came as a massive shock which I still am trying to get my head around, but with so many nice people on this HU site, I feel less vulnerable and lonely now. I am sure you will feel the same for it really is like having a brand new family whom don't judge, and just are there for each and everyone of us. you take care and keep positive Jules... Megan..."

[Hidden]

oh i have COPD and bronchiectasis and oxygen dependent

ive been for an assessment for a double lung transplant and they said they would offer me one then i got a call saying there could be a problem and i have to wait now till thursday to find out whats been decided.

Its fab on here there are many genuine caring people and we have a lot of fun too...its easy to forget to laugh when we have so much going on.

Its very early days for you 12 weeks is not long.

How is the recovery going x

[Jules-55 in reply to Hidden]

Oh you have a lot to cope with, hope it all goes well for you. Its been a long road recovering, stil having pain an limited to what i can do but its the uncertain future thats the hardest to cope with.

[Hidden in reply to Jules-55]

oh the future is a terrible worry......there is another community on here hun its called roy castle lung cancer foundation....we need all the support we can get x x x

[kimmy59]

Evening and welcome.

So sorry you've had such a horrible time, but your in the right place. Sit back put your feet up and have good chat with us, everyone on here are brilliant you'll feel good as new in no time.

Kim xxx

[Jules-55 in reply to kimmy59]

Thankyou ! Everyone is so kind !

[Hidden]

Hiya Jules and welcome to a wonderful family here - I am new and have been made to feel so welcome - ask any question

[Jules-55 in reply to Hidden]

Thanks, may i ask what your condition is ?

[Hidden in reply to Jules-55]

good question I may have asthma and am waiting for chest x ray and doc rang today and wants to refer me to a respiratory specialist - so its a wait and see.

[Hidden]

Hi Jules nice to meet you and welcome to the site. This is a great and supportive site so stick with us here. We will help you get through this x

[jimmyg23]

Hi Jules welcome to this site you will get a lot of support and help from everybody glad to have you on board

[rockett777]

Hi Jules welcome to this site. Look forward to chatting. I was a fulltime carer for my husband. l found this forum, and have met such lovely people, who have been wonderful.....You might be on your own but you wont need to be lonely.

[cofdrop-UK]

Hi Jules and a very warm welcome to you. So sorry you have had a lot to go through. I have had lung surgery too many years ago, although not for cancer - quite a few on here have. You are sooooo NOT alone sweet. There is always someone around to have a chat to. Looking forward to seeing lots more of your posts.

love cx

[FarmerD]

Hello Jules,good to have you with us,I'm sure you will enjoy the company.I have very severe emphysema and await test to see if I can have valves fitted,I had colon cancer a few years back .Luckily they managed to cut out the offending parts .Any major surgery is traumatic both to the physical body and to the mind,as with most things time is a great healer.Stick around with us we have many good times here but also share our difficult times,feel free to ask anything.All the best.D.

[mcnally]

Hi and welcome xx

[katieoxo60]

Hi Jules55, welcome to the site. Glad you are recovering from your cancer op, but sorry to hear you feel isolated. Hope now you have said others will talk to you about your illness plus other things Best wishes for a good speedy recovery.

[angse]

Hi Jules so sorry for what you are going through, no need to feel isolated everyone here is so welcoming and always ready with advice, if you feel fed up up, always someone here to help as best they can, hoping you have a good recovery, try to stay positive, all the best Annette

[scorpiolass]

Hi Jules & welcome. Last year I had a Lobectomy because of lung cancer but it was successful & I am ok on that score now. So will you be but it is early days yet. Do come & chat on the site. Love Mx

[holly17]

Hello there Jules I am also new and yes I had an op to remove part of the lung that had cancer tumour, then chemo for ages, then a scan showed some more tumour so I was back on treatment but, we never give up and after a year or so my Oncologist refered me to a smashing chap at RD&E (Exeter) who carried out a procedure called RFA which was painless as I was asleep, he went into the lung and burnt all the tumours, I went home the next day and pleased to say I have been in remission for 8 months now. So chin up Jules there is light at the end of the tunnel as I had been fighting the cancer for 6 years.

Keep smiling pal. Fred

[Dedalus]

Hi Jules - I had a third of my left lung removed nearly 6 years ago, as well as my right kidney, both due to cancerous tumours but, fortunately, unrelated cancers. Like you I didn't have to go through chemo or anything else afterwards and still feel very very fortunate that my lung cancer was operable. I had very, very mild COPD (emphysema) before my operations - due to smoking - but had given up the cigs before my ops. However, the COPD did get worse after my lung operation (having lost part of the lung) but I'm very lucky to still have mild, bordering on moderate, COPD. Once you feel stronger you will be out and about and living life to the full again, so just take this time to relax and get your strength back etc. This is an amazing website, so pop in each day and read the lovely messages, which have taught me SO much, and there is always someone able to reply to any queries you have. In the meantime, take care, relax and enjoy (I was back to full-time work 6 months after my ops, so I really enjoyed not having the day-to-day grind). Kind regards Pauline x

[Louisiana]

Welcome Jules. I would imagine you are feeling sore, as well as trying to come to terms with everything. Surgery of any kind makes one feel ghastly and uncomfortable and unsure of oneself........but look at what wonders it performs! You are on the right site.....I have been on it months, rather than years but I have learned a lot and it's great to "talk" with and listen to people that actually understand lung diseases.....none of my friends seem to understand. I can even rant here if I want to. Good luck to you...keep posting!

[Hidden]

Hi Jules,can't add to what's already been said!

Just a big welcome from me,& please don't feel lonely,

Love & a big hug xxx

[carmwoman]

Hi Jules, you are never isolated when you have a com puter Hope this surgery is a success for you Jules.

[mwalker23]

H Jules, a very warm welcome to you. The people on here are amazing and will help you with your recovery. Take care.xx