Hi, I was diagnosed with Sarcoidosis four years ago in 2010 and put on an initial large dose of Pred, reducing it after a few weeks to 7.5 mg which I am still on. The consultant said the Sarcoid was gone a couple of years ago, but still continued with the Pred. I would really like to get off it, and spoke to my GP about it and she suggested going down l mg a month. I did try once before, but was a bit overoptimistic and went down to 5 mg and felt dreadful so went back up to the 7.5. I started on 7mg today.
I had a scare last week, my GP thought I might have steroid induced diabetes, but my bloods came back OK.
Will I feel bad getting off it? Is it something I need to live through? How do I know it is actually gone? My consultant has not said anything or done any tests, not even a lung function test at my last appointment. I have to rely on my GP for that. I also have moderate COPD, diagnosed in 2000, and my levels have remained constant, no worse. I did buy an Airnegy machine which I use every day and I think that helps.
Any help would be very much appreciated. There are some fabulously kind people on here, and I wish I had found you sooner