lung valve treatment: Thank you... - Lung Conditions C...

Lung Conditions Community Forum

55,202 members65,969 posts

lung valve treatment

Alice-1 profile image
6 Replies

Thank you everyone for your reply's, I have finally got a name and number, Miss Kornaszewska University Hospital Cardiff (02920742944) I have to send them a doctors referral letter and a ct chest scan on a disc and a special lung function test, then she can tell me if my sister can have it done.. Fingers crossed she will be able to get it done..

Thank you all again

x x x

Written by
Alice-1 profile image
Alice-1
To view profiles and participate in discussions please or .
6 Replies
jeanlock profile image
jeanlock

hi are you going private x

johnwr profile image
johnwr

Hello Alice,

I had the valve operation done in Feb 2012 by Miss Kornaszewska. My op was tremendously successful. I've written about it several times, both on this blog and my own site. If you want to talk about it, either by Skype or phone, send me a PM and I'll give you contact details.

The link for the first of my articles on this blog is:-

healthunlocked.com/blf/post....

The link to my own site is:-

bitzofme.wordpress.com/

If looking at my site, read the oldest articles first.

Best of luck to your sister,

johnwr

Dedalus profile image
Dedalus in reply to johnwr

Do you know if anyone can have this procedure done or do you need to have severe emphysema, and are there any other factors to be taken into consideration?

dailymail.co.uk/health/arti... ,, i remember reading this link when the name poped up on your post,, but heres hoping your sister is suitable ,, best wishes xxx

Ratatouille profile image
Ratatouille

I hope everything goes well and your sister is a suitable candidate. I had valves fitted in July and am definetly feeling the benefit!

out-for-lunch profile image
out-for-lunch

I also had LVR valves fitted AT The Heath by Margaret Kornaszewska, I think about Oct 2011 .... (can't recall precise date, I'm on holiday!!!).

Unfortunately they made very little difference to me ... a couple of years later a consultant up at Royal Brompton was reviewing my notes & made the comment that he thought I was not really an ideal candidate for the valves & he was surprised Margaret had actually carried out the procedure on me. He thought I was a far more suitable candidate for LVR Coils.

I know of one other member here who had the valves fitted in Bristol & they made very little, if any? change to him.

They are not the magic silver bullet for everyone.

You may also like...

Zephyr Valve for lung volume reduction.

Does anyone have experience or know anyone who has had this procedure? I hope all of you are...

Lung Cancer Treatment

I have just been diagnosed with stage 3 lung cancer. To be precise I have T3 N2 MO, I have been...

Lung Cancer Treatment

Have been diagnosed with lung cancer again (but now on the right), 6 years later, but this time they

Endobronchial valve procedure

I have severe COPD plus asthma and have just learnt about the above as a possible option to help...

Hi all I'm newbie. Anyone here have lung damage due to Amiodarone treatment?

Strange really, because I have pre-existing scarring on lungs due to having covid delta variant few...