I have copd

I have copd and I have done everything I am suppose to, I feel it is worse but still not on oxegyn

I feel I am drowning on this mucus it is horrible. I went shopping with my younger sister one

store! I felt like I had ran a marathon. I am whistling when I breath it is scary. Am I a baby for

being afraid? Is there something I can do to make this better?

11 Replies

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  • Hi there Liz57. I have been recently diagnosed, and I was like you on and off suffering like that for 17 months,they said breathing problems were due to low iron levels, as had a massive bleed through mouth last year due to autoimmune liver disease, so was wrongly diagnosed, not with the anaemia, but with the breathing issues, in the end I did not want to go out as really could just walk 10; steps then I felt I was going to collapse, could not speak to anyone, as you know its a nightmare, only thing I did not have and that was mucas, I kept going back to go over and over again, then I was given a spriomartry test and that confirmed it, am taking symbicourt 200 that has a steroid in it I can only have it for 3 months with the steroid, then same inhaler without, do feel a lot better, but gp said it would take at least 3 months for me to feel any significant improvement, so no you are not being a baby, its the most horrible experience I have had, so good luck and go back to doctor you should not have to go through life like this. Angse

  • thank you so much,,,,,,,,,,I am so touched by your response and what you went through thank you and I will be going to the doc soon, so you are doing better now? I hope so

  • try some dark grape juice it is available in your local grocery store Woolworths or Coles if you have them it has a pleasant taste and fairly cheap to buy just drink a glass or two a day see how you go with it you might get rid of some of the mucas please let me know how you get on I drink it myself I have psp thats Progressive Supernuclear Palsy AND THE DARK GRAPE JUICE HELPS ME SO I HOPE THIS DOES YOU SOME GOOD ANYWAY YOU WILL NOT HAVE MUCH TO LOSE AND IT WILL NOT HURT YOU BUT IF YOU ARE A DIABETIC READ HOW MUCH SUGAR CONTENT IS IN THERE BEFORE YOU DRINK IT !!!!!!!!1!! ALL THE BEST TO GETTING RID OF THAT HORRIBLE STUFF THAT MAKES OUR LIVES A MISERY SOMETIMES

    PETER JONES QUEENSLAND AUSTRALIA =PSP SUFFERER

  • thank you and I will try it for sure

  • HI LIS THIOS IS MY 2ND ATTEMPT TO SEND THIS TO YOU SO I WILL MSAKE THIS ONE SHORT JUST IN CASE IT DOES NOT GO OFF WSELL MATE I WOULD TRY DARK GRAPE JUICE THATS WHAT I DRINK WHEN I GET CLOGGED UP ITS FAIRLY CHEAP TO BUY AND THE TASTE IS QUITE PLEASANT ITS WORTH A TRY FOR YOU PLEASE LET ME KNOW HOW YOU GET ON BUT IF YOU ARE A DIABETIC READ THE LABEL TO SEE HOW -MUCH SUGAR CONTENT IT HAS FIRST

    I HOPE THIS SOLVES YOUR PROBLEM OR HALVES IT HOPE A;LL GOES WELL FOR YOU I HAVE PSP PROGRESSIVE SUPERNUCLEAR PALSY JUST IN CASE YOU WERE NOT SURE WHAT THE PSP WAS FOR PETERR JONES QUEENSLAND AUSTRALIA YOU CAN BUY IT

    AT SUPERMARKET OR GROCERY STORES PROBABLY NEAR YOU I HAVE NO SHARES IN THIS NOR DO I OWN ANYTHING CONECTED TO DARK GRAPE JUICE JUST A FRIENLY TIP THAT I USE IT MYSELFWHEN I GET CLOGGED UP SEE YER LIS SORRY ABOUT THE S MY COMPUTER WILL NOT GIVE ME THE LETTER BETWEEN L AND X MATE

  • Isn't dark grape juice red wine? :) Oh Peter lower case letters please unless you have bad eyesight - the capitals are equivalent to shouting online and makes my eyes hurt. x

  • oh you poor thing - i was diagnosed about 2 months ago and felt exactly like that until the meds kicked in (seretide and spirium and antibiotics n steroids to get rid of infection) Once infection went , I felt quite well and thank fully do now. Would you perhaps go to doc to see if you have infection?

    sorry you are not feeling well - hope you feel better soon.

  • thank you and yes I will

  • Hello. - I care for my husband who has severe Copd. There are lots of things available to help you - you are NOT being a baby you are quite naturally scared. This disease is frightening and I have found over the years is that you have to be proactive.

    My first advise would be to contact the BLF helpline they have some fantastic information and leaflets. Please go back to your doctor there are drugs available to help with the mucous. I wonder if it is worse than normal Or has it changed colour - perhaps you have an infection which can make all your symptoms much worse.

    The doctors cannot give you a cure but there are lots of meds available to make sure you have a good quality of life. There is a fantastic course called pulmonary rehab which is a course of exercise and information - please ask your doctor it was a life saver to my husband.

    The hot weather may not help either, my husband finds it cry difficult at the moment. We still have a great life just a lot slower than others! In my opinion the key is to try to take control - ask the lovely people here, ring BLF and go back to your doctors. Wishing you much luck and easy breathing, TAD xx

  • thank you so much

  • thank you

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