Went for my 1st COPD review at the hospital since discharge in February. According to the COPD Consultant I have end stage emphysema. I said does that mean I am on the way out. I explained that although I am 64 I still work 4 days a week. He didn't seem to have an answer to that just kept looking at the screen. He did, however say that I seem to understand my illness very well & that with COPD there is no set answer but that oxygen and inhalors were the only treatment that could prolong life. Fair enough. I just wish that Drs would think before they speak. He even said he expected to see me in a wheelchair. Sorry to disappoint mate. I am on 15 hours oxygen at 1/2 litre and on 1 litre if I move about. My problem is that I haven't been increasing the ambulatory oxygen & of course, suffer the consequences. Leaving the hospital was a nightmare. I got out at he wrong floor and almost collapsed in the AAU corridor but nobody offered me help or even a chair. I was literally gasping for breath. Eventually a wonderful nurse saw me outside & found a lovely porter who helped me get to my car.
All the best