Been on 1/2 lt for a year 16 hours, and use between 2 or 4 when active depending how I feel. But was told today I can reduce to 10 hours for now, keep a diary on how I feel and review in 4 weeks, and if it's still as good might take it down to 8. So I'm feeling quite happy about that, and it was the blood test so I know it's accurate.
Anyone else had this, didn't think it would ever improve.
Kim xxx
P.S And I've not been well the last week. xx
A bit odd lowering the time to 10 hours. I seem to recall the minimum recommended is 15 hours. I'm on 1/2 L/min and 1 L/min when active.
I was originally put on the concentrator after having Pneumonia June 2013 when I had hospital at home. But because I had infection after infection we could never find the right time to check my levels properly, but I've had Azithromycin since December so finally today we've done the test. I don't think the intention was ever for me to be on it permanently, so now she wants to reduce it and see what happens.
She did say if I had gone today for my first assessment it wouldn't have been prescribed, but now it's a crutch she doesn't want to withdraw it all together.
Kim
Don't know much about oxygen .....but this sounds like really good news . Best of luck.
Hi Kimmy well that sounds like positive news,bet you feel chuffed.Just hope they'd been to specsavers and read the results correctly 
. If you struggle get on the phone eh,hopefully alls good and happy days.Keepwell now 
Janexx
Good news kimmy. Keep well.
That's brilliant news Kimmy
Its just so good when things improve
I am on Azithromycin too, and I too feel it's a miracle drug, as so far all the constant chest infections which had become more or less continuous have stopped !!!!so I feel like I am improving too
WE GO GIRL !!
Thanks to everyone, it is lovely to have a little bit of positive news for a change.
Sohara so glad you feel so well, I was really worried my consultant would take me off it as it's been 6 months, but my respiratory nurses told me they wont because of the improvements it's made to my life, and that more and more people are being prescribed it.
Kim xxx
Hi kimmy59, just given me hope. Virtually had to beg for oxygen assessment after being on 2lts ambulalitary. For almost 2years, like you infection after infection, amoxicillin about every month . Hate prednisolone ( gives me he be jeebies ! ) going to ask nurse about azithromycin. Hope you carry on keeping well (ish) love Anne x
I'm glad my post gave you hope, I think the consultant has to prescribe Azithromycin, but it's worth asking.
Kim xx
What did they do Kimmy for your oxygen accesment I have to go for one copd gone to Severe I have struggled for over a year the only thing i dont fancy is if they pipe it round house we are in a small bungalow no room for anything. But can’t carrry on this way I can’t breathe just walking round house. Nebuliser doesn’t .seem to work anymore xx
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