Tell us your experiences.

[MarkPilling]

Hi

As part of our (BLF) on-going service improvement, we are keen to find out about the experiences of living with lung disease amongst people who currently do not have access to, or do not currently attend, a Breathe Easy group. If you are happy to be contacted by us, please email [e-mail].

Thanks

Mark

[Plumbob]

Tried to send e-mail but [e-mail]. was coming up as unknown e-mail !!! is it correct or is it me , I copied and pasted so can't be a typing error !!!

[termite in reply to Plumbob]

anything .org is a web site, you need an e-mial address! Perhaps if you log onto the website there will be a contact link available.

[Hidden]

Please pass on ... I am willing

[Moderator in reply to Hidden]

Try this [e-mail]

[Plumbob in reply to Moderator]

I am more than happy to take part so please pass my info onto the appropriate person!!!

[Ohtwo]

I will happily take part

Kindest GJ

[Moderator in reply to Ohtwo]

Try [e-mail]

[kimmy59]

I'll take part, if you could pass on my details please.

Kim

[Moderator in reply to kimmy59]

Try [e-mail]

[lindiane]

Hi I tried to use the provided email address but gmail email say it doesn't exist .

Anyway I will be happy to help in any way. please pass on my details

regards Linda

[Moderator in reply to lindiane]

Try [e-mail]

[katieoxo60]

I would love to take part have just sent an email

[Bryju124]

I will happily take part again cannot access email address.

[peege in reply to Bryju124]

Just change the first S to lowercase s

[Nikkers]

I tried to send you an email at the address you've given, but it came back unrecognised, so this is what I wrote.

Hello,

I don't mind talking about my COPD if it can be of any help to you?

I have had Bronchiectasis since I was a baby (I'm now 72) and in recent years have developed

Emphysema too. I take 2 inhalers daily and have stand-by antibiotics for infections.

I attended a pulmonary therapy group earlier this year for a few weeks, but I'm not sure if that

is what you're referring to?

Regards

Nikki

[corazzon]

I will take part.

[corazzon]

I will happily participate too.

[huggs]

I have taken part and outlined the facts and how I feel about not having access to Breath Easy. I don't know if that is what they want, but I have provided enough information to give a background and if they want to contact me again, then they can.

To anyone having problems with the email address Mark originally posted. Use all lower case letters, me thinks Mark made a slight error in putting a capital S instead of a small s. I digress, as usual!!! hugs xx

[onamission]

I would take part we do have a group in our area so I'm not sure I would be suitable

[Offcut]

I would be happy to take part.

[Offcut]

Had a reply just a matter of waiting to see what happens now.

[Sokrackers]

Hi guys, here comes the newbie! Do we have a live chat facility?

[Jeremy76]

Why not just tell your experiences here?

[Jeremy76]

It's been a 18 months since I was diagnosed with early stage emphysema.

I had a check up about 6 months ago and it seems there has been no progression or regression of my condition. I have an occasional cigarette (about 1 per month avg) and feel it really gets to me the next few days after, so i'm working on avoiding the cravings and giving in to them. Overall, i'm doing ok.

Putting on weight is more a concern right now!

Damn this appetite post smoker deal!!!