hi i am 52 suffering from asbestosis ... - Lung Conditions C...

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hi i am 52 suffering from asbestosis stage 3 emphysema and alpha 1 i have bought an oxymeter which shows very different results from what

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i am told at lung function tests at local hosp i only sleep a couple of hours per night on waking my spo2 is around 80 which rises on getting up my bp is about 85 on exercise my spo2 can rise to98 with a bp of 145 which slowly overtimedrops. my normal spo2 is around 92 only after sitting still for several hours , as you will all no the breathing headaches and eye pain sometimes border on insufferable .these symptoms have been ongoing for 1 year .I have my second appointment tommorow at tha sleep apnea clinic whose possible diagnosis last time was stress related ( REALLY) i have taken several pictures on my phone of my spo2 below 86 has anybody got any advice on how demanding i should be in trying to get oxygen therapy many thanks

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Ad take you phone and show them .. ad also get you gp to tefer you to a occupational therapist as most gp's will nit be intrested in how your living with your condion .. But chats i have had thay are best people to see as docs take what thay say into account

Might recomend oxygen when ya done ya sleep apnea thing.

MANY THANKS

Puffthemagicdragon profile image
Puffthemagicdragon

Headaches can be due to too much carbon dioxide in the blood. I should get that checked out as well. In fact they should do a blood gas test.

caring.com/articles/copd-si... click the link, hope it helps xxx

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I had the co2 test on my ear while upright and it was ok however I do get shocking headaches after sleep and in the day plus migraines. Waiting for another sleep apnea test As I will wake in the night (not all) gasping for breath. My norm is 92/95% upright but I drop 12.2% when flat. I have RLD but worked with asbestos for over 10 years many years ago.

Hope you get it sorted

Be Well

moneal profile image
moneal

Take your oxymeter with you and compare their reading against yours, my doctor checked mine with me and found quite a difference, they are apparently very sensitive to the batteries they have in them and to the temperature of your finger.

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