Just been diagnosed with severe emphy... - British Lung Foun...

British Lung Foundation
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Just been diagnosed with severe emphysema and moderate copd, no going back now!

Bryju124
Bryju124

I think I have been able to take it in my stride because of all you guys and your positivity on this forum, just a bit scared though. So thank you for keeping it real :)

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14 Replies
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But you can still go forward!!! :)

Afternoon and welcome.

I'm so glad you feel supported. I was diagnosed with severe Emphysema 2011 at the moment I feel really well I was given Azithromycin in December because of constant infections. I've just finished my second PR and did really well and my nurses have said I could possibly reduce my oxygen. I know I'll be ill again but I've just got to take each day as it comes (And keep everything crossed).

Kim xxxx

Bryju124
Bryju124
in reply to kimmy59

I start my azithromycin hopefully I will be ok on it, I have heard it helps enormously, on the list for or again heard this helps too. Thanks for your response and I hope everything remains good for you for a long long time:)

Hidden
Hidden

I am very ill and a gold stage Emphysema,awaiting a lung reduction op.I also have severe asthma,Keep going hun,and keep fighting..Regards Laura

Bryju124
Bryju124
in reply to Hidden

So sorry to hear you are very ill I hope you don't gave to wait too long for your op and that it helps you :) stay strong x

Hidden
Hidden
in reply to Bryju124

Aw thank you ..I have just come out of hospital as i swelled up like a balloon, Told them I had pain under this rib pain under that rib lol had ct scan and I have lump/cyst on kidney and gallstones to add to my ailments ..Whatever next plus the fluid is right sided heart failure..Thank goodness for Oramorph and Zomorph..Please keep strong there are wonderful ppl on here who are with you all the way..god bless Laura x

sue48
sue48
in reply to Hidden

Hi there laura. !!! Wondered where you were good lord what else. ? I hope you are feeling a little better. . What happened ??? When did you come home. ? Speak soon lots of love. Sue. Xxxx

Hidden
Hidden
in reply to sue48

Hiya sweetie,its all been happening..I looked 9mths pregnant i went to docs n she threw me in hospital..i have gallstones and a weird lump has taken up residence in my kidney.I now have corpamanale right sided heart failure.Dont think I should be eating this cream cake lol,, My lappy poorly and in shop to be mended.I am using old one with on screen keyboard ..let me know how you have been in yourself..Hope your ok big hugs xxxxxxxxx

sue48
sue48
in reply to Hidden

I sent you message on your other post that you sent mt yesterday ..!!buy one get one free. !! I ok ta but now got diabetes. Bugger ! Never mind eh you have good rest and i message u tomorro. Hope cake and morphine halps u sleep good combination if u ask me ! Nite n bless. Xxxx

Hidden
Hidden

Hi I am a bit confused over your diagnosis! Emphysema comes under the umbrella of COPD along with Chronic Bronchitis. So i don't see how you can be moderate in one and severe in the other? Or am I just being thick? :) x

Bryju124
Bryju124
in reply to Hidden

No I don't think your being thick that's how it was explained to what can I say ????

Bryju124
Bryju124
in reply to Bryju124

Explained to me sorry

FarmerD
FarmerD
in reply to Hidden

That confused me too,does,nt make any sense,sometimes wonder if gps know what they,re talking about?D.

Bryju124
Bryju124
in reply to FarmerD

I know cos I thought under same umbrella, I will talk to resp nurse seeing her tomorrow maybe clear up confusion???

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