I came back from Thailand some 5 years ago now, and within 2 days on being home, I developed SOB etc. Went to the GP who sent me to the hospital, and there I stayed for a week. I was checked for blood clots, infectious diseases, tropical diseases etc etc, but nothing came back with any clues as to what was going on.
I have always been asthmatic, and was taking ventolin when required etc.
Since leaving the hospital those 5 years ago, I was referred to the Respiratory Team at the Royal Surrey in Guildford. My consultant was a Mr. McCallister who I was led to beleive, was an expert in his field.
I had seen him every 6 weeks for nearly 3 years, tried different medications etc, (guinea pig) x-rays always came back clear, and in the end I think he thought I was a hypochondriac.
I saw a different consultant on one occasion who said, "Have you had a CT scan?"
No, I replied?
Oh, well I think that would be a better idea, just to see a bit more detail to find out what's going on. said the consultant.
I was booked in, only to get my results 6 weeks later at my next routine appointment.
Apparently I had Bronchiectasis. He showed me the CT scan to point it out, but really it meant nothing to me.
So, I finally had a diagnosis.
That took them 3 years to work that out. Cheers Mr McCallister!!
ANYWAY, I have since moved out of the Royal Surrey catchment area, now in Frimley Park, Camberley area.
I had a severe asthma attack in December last year, and spent another week in the Frimley Park Hospital.
I had to fill in a form with all my meds I was taking, and what conditions I had been diagnosed with.
Obviously Bronchiectasis was on that form.
After that hospital visit, again I was referred to their clinic.
I had a couple of appointments with the resp doctor, who did various tests that had never been done at the Royal Surrey. I was tested for Cystic Fibrosis, had varying blood tests to determine how I might have caught Bronchiectasis etc etc. He checked all the medication I was taking etc etc.
However, after all of that, he requested my CT scan from the Royal Surrey to determine where the Bronchiectasis is.
The Royal Surrey took 6 months to send this CT scan to Frimley Park!!
My new doctor at the Frimley hospital did not want me to have anymore radiation due to the risks involved, hence why I didn't have another CT scan at Frimley Park.
Anyway, I have just received a letter from my new doctor to tell me that he and his radiologist have looked at the CT scan from the Royal Surrey, and can find NO evidence of Bronchiectasis at all???!!!
My new doctor feels that I have uncontrollable asthma instead, and have to wait for my next appointment to rejig some meds.I am 42, and for the past 5 years I have been a Guinea Pig.
I AM SOOOO CROSSSSS!!!!!
I don't know what to do or think anymore!!
Can someone please help me or advise me on what my next steps are?
I am so sorry for the rant, but I thought it would be good if you knew the ins and outs, before giving me sensible advice!!