As I said she's gone from a 'normalish' life,walking round the shops etc. She couldn't run up a flight of stairs but she could walk up them, now she can barely walk to the bathroom and is confined to bed. She's been for an oxygen assessment twice but been told it won't help. She's very depressed at the moment as you would expect and we are all feeling that she's getting no help from the hospital. I believe she's also developed pulmonary hypertension. Has anyone else experienced any thing like this. The speed of the decline in health has been shocking. Many thanks.