Good morning all

[ladyinspain]

Well im not much wiser after my visit to my consultant -I know I have pulminory fibrosis . However they don't know which type -Has anyone with this Fibrosis have any advice for me -I have to have more tests -just a bit concerned that the tests are more for there benefit than mine ..wee bit worried now ....

[PaperMan36]

Hello ladyinspain

I have bird fanciers lung also pilimonary fibrosis there are so many different types have a look on the blf site under pulmonary should give you done advice,

I would also ask your consultant what type he thinks it could be or call his secretary & raise your concerns hopefully you may get the answers good luck

[Mocarey]

Hi Ladyinspain. I too have pulmonary fibrosis as a result of long standing sarcoidosis.. Good advice from Paperman36. Take care. M x

[ladyinspain in reply to Mocarey]

Hi Mocarey . Yes all good advice on here - stay well & take care xxx

[ageing-lioness]

Lady in Spain

Hi hope today is good for you. I don't have the illness but I nursed my husband thru his and my advice to you is research at every opportunity! If you know how it will progress you can deal with it so much easier a bit a a time rDon't frighten yourself with some of the sites via USA they can be a bit graphic.

One question ,do you speak Spanish ? If not either get yourself a medical translator that you trust probably from the hospital.They are pretty good at Santa Anna in Motril but you maybe elsewhere.All the medical professionals in Spain can READ English it's part of their Qualis ! So if you write everything down with bullet points and keep questions relatively simple ( I don't mean yes and no but the tendency is to ramble in your haste for answers) they Will get you the answers ! Other than that,loads of breathing as deep as you can, walk in mountain air is good if you can and keep away from traffic fumes as much as possible.BLF is excellent for info..as are the folks on here so supportive whatever problem you have they are their for you! Abrazos AL

[ladyinspain in reply to ageing-lioness]

Hi ageing-lioness .Yes I speak Spanish quite well ,however My granddaughter is fluent ,so no problems with the language .. I always take me little black book with me -with all my questions -I live in Murcia & cant praise the hospital ( Los Arcos ) high enough . Its just nice to hear from people who know what you are going through Abrazos para usted xx

[PingAnnieL]

Hi there

All the information your doctors have can help you understand and manage your condition. I write it all down even if I don't understand it, then do the research online at home.

Then I can prepare a list of questions for the next consultation.

It makes me feel more in control. As a result I have been able to push for more information and get tests and help much faster than would have happened had I sat back and waited for the docs to guide me.

The more pro-active I became, the lighter the load I was carrying became.

Good luck & God Bless.

Ping. x

[ladyinspain in reply to PingAnnieL]

Thankyou so much PingAnnieL. Yes I think that's what I don't like -not being in control -but as I get the hang of things & with my little black book with all my questions -im sure I will become more pro-active also & lighten my load just a wee bit --Take care & stay well xx

[longlungs]

Hi ladyinspain Im sure the extra tests are for your benefit aswell as the medics.As the others have suggested right things down to remind you what you want to ask.Everything will feel more comfortable with a little time and the more information that your given re your diagnosis and treatment.Sounds like you have very good medical care and confidence with them which helps enormously.I think most of us struggle a little at first as with all things that are new to us.It gets better really it does. Keepwell now Janexx

[ladyinspain in reply to longlungs]

Thankyou Jane . It helps just to run things past people who know where im coming from .

You stay well & have a good weekend x

[poppyval]

Hi Ladyinspain I too have pulmonary Fibrosis which my Rheumatoid Arthritis started off. The RA attacks the internal organs as well the joints, that's why I got it. As the others say take a notepad with you and write down everything you can. Take care. Cheryl

[ladyinspain in reply to poppyval]

Hi Cheryl ..Ouch that all sounds very painful ..Yea im writing everything down in my little black book .

Stay well & have a good weekend xx