Hi Kat, well done for posting! I did the same looked in for ages before being brave enough to join in, and oh my goodness how glad I did. I have learnt so much form lovely people here sharing their knowledge, offering their ideas, thoughts, opinions and experiences. Best thing I ever did for myself.
Knowledge appears to be the key and with it you get the courage to stick up for your self (because, really, at the end of the day it's up to us).
I've improved no end.
I don't have what you have although yesterday I was at consultants - refuse to see him though (because he's rude, dismissive, horrible and doesn't listen) so always ensure there's a registrar on duty for my appointment. So I was sitting there, free of stress yesterday knowing I wasn't going to have to converse with him and after half an hour who should call my name but HIM. I went over, smiled and said " thank you but I'm seeing someone else". Went back to my seat and the lady near me said "what did you say". I told her and she said ooo, you're so brave, I'd never have the guts. It was only a little thing. I didn't tell her why I won't see him, didn't think it was fair but I did tell her that you never have to see anyone you don't want to.
This site gives you knowledge and therefore confidence.
Very good luck to you in getting the care you deserve.
I saw the someone at the specialists 5 times in the last 13 months and I see my respiratory nurse at the practice 6 monthly. And I'm mildish to moderatish! My gps want to help me now, not wait until I'm worse (thank goodness). I've even done the PR (pulmonary rehab) which was excellent too, have you done it??
Take care xxx Peeg