Chronic Hypersensitivity Pneumonitis? - Lung Conditions C...

Lung Conditions Community Forum

55,061 members65,847 posts

Chronic Hypersensitivity Pneumonitis?

mary1956 profile image
6 Replies

Saw a Professor who is an expert in lung disease today and she told me that Birmingham was wrong in telling me I have IPF.. Looking at my lung biopsy results together with CT scan shows I have an auto-immune disease. Had a load of blood tests to try and isolate which one. They want to treat it with low dose chemo (cyclophosphamide) and steroids. Have others experienced this?

Written by
mary1956 profile image
mary1956
To view profiles and participate in discussions please or .
Read more about...
6 Replies

I don't have this, but wonder if CHP could be the result of the IPF diagnosis, CHP in UK sounds like EAA (Extrinsic Allergic Alveolitis) but to be sure you would have to check back with your specialising consultant about these things.

A CT Scan show actual damage to lung tissue, so if this is the case, it would make sense you are having difficulty breathing.

Reads that may interest you:

nhlbi.nih.gov/health/health...

Patient UK refer EAA - Synonym: hypersensitivity pneumonitis

patient.co.uk/doctor/Extrin...

BLF have a page on EAA also.

I hope you get on ok with the chemo (cyclophosphamide) drug and that it helps improve things for you.

Hope you are soon feeling much better.

Best wishes BC

PS the blf helpline may be able to help you further with this, access contact details by clicking on the red balloon top right, helpline open weekdays 10am to 5pm

mary1956 profile image
mary1956 in reply to

Thanks for the reply and the links. Regards Mary

Chris3 profile image
Chris3

My diagnosis is chp and has successfully been treated with steroids to date. My consultant has told me that their are other options before transplant open to us. I think that includes cyclophosphamide. Hope you are as successful as me.

jac493 profile image
jac493

Hi Mary1956 i was diagnosed with adult plch in August lst yr after biopsies. It can be treated like urs if needed but im on watch and see . I stopped smoking and i feel fine now my exrays and lung function are lmproving. U need to find out what Auto immune disease u have to get more info . Good luck with ur treatment Jackie xx

mary1956 profile image
mary1956 in reply to jac493

Hi, Thanks Jackie. They took loads of bloods on Friday to try and identify which one. Lots of the usual have come back negative. Brilliant news that your lung function is improving. That's what I'm hoping for.

strawberry11 profile image
strawberry11

Yes i had it a while ago and definitely stabalized me,think i was in for 3 times in the week,mandy

You may also like...

hypersensitivity pneumonitis.

Looks like I have managed to have pick up an Avian antigen. On top of my Small airways disease....

Hypersensitive Pneumonitis

my age with a lung condition. Would like to touch base with anyone who may be experiencing similar?...

Hypersensitivity Pneumonitis

Accute & Chronic Lung Inflammation?

ago I had a bronchoscopy, and my results have been up loaded to my hospital my chart, but the...

chronic productive cough for 2 years. Moldy house.

says post nasal drip. I have a massive mold problem in my basement and have been going down there to