Having been told in December that the lung biopsy has confirmed my diagnosis of IPF I saw a different Consultant today who isn't so sure. He said although the CT scan I had was really abnormal he's not convinced it's fibrosis?. He's now referring me elsewhere. My lung function test today was worse than September and lungs function now 54%. (It was 66%). The 6 minute walk test brought SAT's down to 78%. He said they may never know what's wrong and although all auto immune tests were negative, I may still have an auto immune disorder. He thinks I may need very high dose intra venous steroids . Plus oxygen in the home. It's now almost 5 months since I started investigations and I'm no further forward. Have others experienced this?
Last edited by mary1956
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