I'm still waiting to get an appointment to see the Consultant for possible treatment for IPF which was diagnosed on the 13th December following my lung biopsy. So far apart from giving me a diagnosis by letter, no medic has seen me to explain what the disease is, or possible treatment. Similarly no medic actually told me that they suspected IPF and that I was having the lung biopsy to confirm the suspected diagnosis. In fact the Consultant said she had no idea what was wrong with me. I have obtained all my knowledge from the British Lung Foundation, NICE etc. Is it usual to have to wait so long?
Last edited by mary1956
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