What do you do when you have an eighty one year old man who is just plain stubborn and shies away from hospitals and keeps as low a profile that he possibly can?
I have been taking oxygen at 2 Litre per hour 24/7 for at least six years and am about to have a reassessment by the respiratory matron here at home within the next few days. The first one in over three years.
Do I tell her that I can’t stand up for more than a minute or two, that it takes me several minutes to get my breath back after walking to the dining room or the simple task of taking a flannel to my face exhausts me?
That I can’t go out on my scooter because I am unable to fill my portable unit up with liquid oxygen and the other cylinder types are too heavy to carry, that portable concentrators are not available in this area except for going on vacation.
I do try simple exercises and when I read what I have just written feel ashamed that there are
so many of you far worse off than I am, while others are taking care of themselves and their families, some of you even holding down a job while others like myself can only admire your courage.
Like quite a few of you I am very aware that my lungs are deteriorating all I have to do is hope that they carry on working for a few years longer.
Emphysema is a lousy illness and without this forum a very lonely one. The trouble I am having now is confusing illness with age and not knowing which is the villain.
What a godsend you people are for those of us seeking answers to questions that we are afraid to ask our doctor or loved ones.
The advice given is always sincere especially when followed by showing that the red balloon is there for one good reason ...........to be pointed at and used.