Possible MAI diagnosis. Thank you to ... - Lung Conditions C...

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Possible MAI diagnosis. Thank you to everyone that responded to my post.

Johnboy1 profile image
5 Replies

I have to wait and see whether the diagnosis is confirmed and take it step by step.

BLF nurse helpful over the fone. Advised that I try and boost my immune system with Allicin and Manuka honey.

Thank you all again.

Johnboy

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Johnboy1 profile image
Johnboy1
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Tamara70 profile image
Tamara70

Hi Johnboy

I shall keep fingers crossed that your diagnosis is negative.

I shall be happy to answer any questions you may have if you put them up on the site,

Stay well Tamara

Johnboy1 profile image
Johnboy1

The recommendation was Allicin max which I ordered from Amazon.

Thank you again for your good wishes.

Will keep in touch

Johnboy.

helingmic profile image
helingmic

flibberti, I didn't know this either. I do eat lots of garlic. I hope the smell doesn't get through on the messages :-)

helingmic profile image
helingmic

I had an have Mycobacterium Avium Intracellulare( When I was diagnosed with this, I was in hospital. I asked teh doctor what it was, he replied you can Google it!!! I was in a hospital bed. Fortunately, the staff nurse was very obliging and gave me the answer.

This can be a TB-related bug. fortunately, Rifampicin and Clarithromycin do an excellent job, but you have to take these for at least 2 1/2 years to be cleared.

I did this, and the consultant stopped it in the summer this year. In Autumn, I got pneumonia and another strain of it. so I am on those drugs indefinitely, as the consultant (me too!!) doesn't want me to have another infection of the sort. I never thought I would get a TB-related bug! But as the presence of the bug is seen very soon, it hasn't hot time to develop into a full blown TB. so, if you are diagnosed with this, the con is that you will have to take drugs for at least 6 months (or more), the pro is that it can be eradiacted successfully.

Sohara profile image
Sohara

Actually last time I saw my chest clinic they said there that TB was becoming a problem again, and she has put to test for TB on a sputum pot for the next time I send a sample in.

Has anyone else had this too?

Helingmic I an glad you are stabilized now, and hope that you get cleared of your 'bugs' very very soon

Love Sohara

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