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Hello every one. This is my first post. but I'm a little bit confused. I walk 5 miles three times a week, also go to

breather profile image
35 Replies

The gym three times a week, with not many problems, but my nurse says I have severe emphaema.

I can't understand it.

I'v had emphysema for thre years now.

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breather profile image
breather
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35 Replies
Toci profile image
Toci

It has a different effect on each of us. Some are very debilitated and others can continue working. Just be happy you can still do so much! :)

breather profile image
breather in reply to Toci

Yes that's what the nurse says, I'm retired now and she says I have to keep fit.

Thanks for the reply.

nannyb profile image
nannyb

Good morning. Keep feeling great, Don't feel confused or worry. Worrying is like a rocking chair, it gives you something to do, but doesen't get you anywhere. Nannyb x

in reply to nannyb

How true, I am a terrible worrier, and find it so difficult to switch off. I envy those people who can literally take each day as it comes. I try to, but I'm always worrying about tomorrow, and that never comes.!

nannyb profile image
nannyb in reply to

Hi Here's a another fav quote hope it helps, If your problem has a solution Why Worry, if it dosen't Why Worry... all the best Nannyb xx

breather profile image
breather in reply to nannyb

Thanks nannyb

breather profile image
breather in reply to

Thanks for the reply sheepdog

in reply to nannyb

I will remember that, nannyb xx

breather profile image
breather in reply to nannyb

I don't worry really I do try to think positive. Thanks nanny.

eastridingbigden profile image
eastridingbigden in reply to breather

we die if we worry and we die if we dont worry so why worry

Great fantastic ! You are doing all the right things and keeping fit! Don't be confused be grateful! Each sufferer is different with this condition. I truly believe if my husband had kept fit and gone to the gym three times a week he would not be so breathless! Long may you be as fit! with love and admiration TAD xx

breather profile image
breather in reply to

I'v always played cricket and rugby, I used to smoke and the doc say that's the problem.

PollyP profile image
PollyP

Wahoo, keep the walking/gym work up! It really makes a difference, especially through the winter. :-)

breather profile image
breather in reply to PollyP

Yes it's a good walk where I go. Thanks pollyp.

That's great news for you if you can achieve 5 miles 3 x weekly and gym.

Keep up the good work, maybe when the weather is too cold, too wet, do your walking on the gym's treadmill unless you have one at home, (even better).

Check with your respiratory nurse for advice about walking 5 miles in freezing winter weather to be sure you don't set yourself up for complications in lung health. Or, if you live in the UK, you could check with BLF helpline about this, click red balloon top right for contact details.

Welcome and best wishes

BC

breather profile image
breather in reply to

Yes when the weather is cold or wet I cover my mouth with a scarf, thanks blakeyC.

helingmic profile image
helingmic

Dear breather, Welcome to our group!

I go 3 times a week to the gym too. My consultant keeps telling me that I have damaged lungs! Well! I did catch pneumonia and the presence of a TB-like bacteria too! So my consultant gave me a couple of antibiotics to take on a permanent level.

Damaged lungs make you more vulnerable to infections. So try and keep away from coughing people. But Hey ho, it's a great day at the gym - especially when the weather is terrible! It feels better on one of those weight machines, doesn't it? Keep it up, just be cautious of not getting any infection. Good to have you here, tell us more of your progress!

breather profile image
breather in reply to helingmic

I'v been going to the gym for a long time now. I'v always been fit so it was a shock when they said I have emphysema. And I feel good really. Thanks Helingmic.

KingoftheCocktails profile image
KingoftheCocktails in reply to helingmic

breather has been a member for over 12 months. This is first time of posting.

KOTC

helingmic profile image
helingmic in reply to KingoftheCocktails

Well done, breather and welcome. perhaps you were out for a walk all this time! :-)

Well done, Breather x

breather profile image
breather in reply to

Thanks annieseed.

katieoxo60 profile image
katieoxo60

Sounds good news to me breather, you are as healthy as can be, given that you have emphysema. They say that exercise helps to keep the stamina level up in these types of illness. Avoiding people who cough reduces infection risk, but some of us have coughs as a symptom of lung disease and are not infectious .Good luck with keeping healthy and welcome to the site.

breather profile image
breather in reply to katieoxo60

Yes think I'm ok, I do Try to listen to the nurse thanks for the reply.

sadie1951 profile image
sadie1951

That's amazing breather. Do you know what your FEV1/lung capacity is? Sadie xx

breather profile image
breather in reply to sadie1951

I had a reversibility test and the nurse said It was 54%. Thanks sadie1951.

breather profile image
breather

I would like to thank everyone for your interest. I'm new to this so if I missed anyone I'm so sorry.

sadie1951 profile image
sadie1951

Hi breather, 54% would put you in the moderate (stage 2) category but you are still doing really well and if you keep it up you will slow down any progression of the disease considerably. Here is a useful link for you which should be helpful to you.

patient.co.uk/health/chroni...

All the very best to you. Sadie xx

breather profile image
breather in reply to sadie1951

Thanks for the help Sadie.

I'm not sure what I'm doing yet, I'm not used to this blogging game x.

breather profile image
breather in reply to sadie1951

Thanks for the link Sadie. It is very informative. I learned a little bit more about copd.

Hope you are ok x.

brooksju profile image
brooksju

Hi breather,how lucky you are to be feeling so fit, its all down to your good management of the condition so keep up the good work, I have 40% lung function and have been told I am severe emphysema, I have done a PR course and do regular exercise and I feel reasonabley well most of the time so I think the secret is lots of activity if you can,take care and welcome. x

Jude

breather profile image
breather in reply to brooksju

Yes plenty activity is the answer, thanks Jude.

KingoftheCocktails profile image
KingoftheCocktails

Nice to see you on the site breather. Don't forget to have your daily tonic

KOTC

breather profile image
breather

Yes I have been reading your posts for a while now, very funny.

PompeyBob profile image
PompeyBob

My consultant says I'm only transferring 20% of the oxygen from lungs into my bloodstream, yes I do get breathless but I'm still working and trying to carry on as normal as possible. The adage is use it or lose it. I've done Pulmonary Rehab and it works.

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