Hi all, It's a beautiful day here in Yorkshire. It would have been lovely to have a stroll but I won't be going nowhere.
I had above jabs Friday morning. I have had one flu jab last year and this year I mentioned not being offered a pnemonia jab yet. The nurse gave me it there and then so I was well made up.
By teatime, I had a very sore arm, which I expected and an awful pain in my armpit, which I didn't.
By bedtime, I felt very unwell, and woke up next morning with my armpit, all down my arm and side of my chest really hurting. It was all muscular. I have Fybro, and the injection must have caught my muscles and sent me into a flare.
It the moved into it's usual spot of all over my back muscles and neck.
I stayed in bed and used my wheat bags,but the pain got that bad, I had to ask my Son to massage my back and neck, (Over my pajama's.) which I hate doing because it doesn't feel right him having to do it, but I was in agony .
My partner always used to do that for me and occassionally, he would moan. So, I don't want to put on my Son.
Mind you, my brother arrived while he was doing it, and he was telling him to shift over, he'll do it, because you have to find the pressure points. He had heard it on radio 4. Lol.
My son wasn't budging, he said he knew where the pressure points were because they were stuck up like marbles. Haha.
What makes it worse is the anti depressant medication I am on has made me not able to take any Tramadol. I can't take Co-codomol either because it doesn't agree with me. Paracetamol do nothing.
Anyway, I feel a bit better today, but still have considerable pain and aching.
I don't really have a lot of COPD problems - yet. I have some form of inflamatory arthritis, (Suspected Lupus.)and this damn Fibro is the one getting me down the most. It worries me about being able to keep fit to hold back the COPD developement. It makes me feel bloody doomed. Lol.
I know there is somone else on here with Fibro, but can't remember who so, if your reading this, I wouldn't mind hearing any tips on coping with it. I won't always have someone here to help when they finally move on with their lives.
I hope everyone has a good day.
Casper. xx
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Hi thats awful the pain you are in .my daughter was diagnosed on tuesday with fibromyalgia after 5 years of seeing different people and been told thats how long it takes too diagnose someone and just as the five years were coming up she had her worse flare up that still there after 3 months .Hope you feel better soon are you under a consultant for your fibro we are also in yorkshire take care Dorothy
Hi Newlands, yes I have a Rheumatogist. I got referred at the start of the arthritis. I was diagnosed with RA for 4 years, then they changed it to probable Lupus. They said it could take up to 10 years to show up definately. The fibro started about 6 years ago.
Funny thing is, when I had the severe onset of the Auto immune thing, my Dad was in hospital and was very ill. So I put it down to stress but I had just stopped smoking a few months before. Like an idiot, I started again.
The Fibro started when I stopped smoking again. Could have been just coincidence but I'm going to stop again soon and can't help feeling a bit apprehensive about what I'll end up with next. Such is life. Lol.
Hoping you feel better today Casper and are not in so much pain. It must be terrible. My daughter-in-law has lupus and has flare ups sometimes. The flu jab is good and the pneumonia one too but auto-immune disease is so hard to deal with. Pete has sarcoidosis and doctors are on the fence as to whether that is auto-immune or not. Good luck to you and hope you get all the help you need. Your son is a star! Take care, love, Carole xxxx
I am feeling brighter as the day goes on. So sorry your Daughter -in -Law has got Lupus. People just don't realise how much pain these auto-immune deseases cause because you don't look poorly. It's a daily struggle. She's lucky to have such an understanding Mum-in-law like you.
As for your husband having Sarcoidosis and them thinking it could be his immune system, I wouldn't be surprised myself. Loads of illnesses are being connected to it. How the hell people coped with these diseases say, a hundred years ago, I can't begin to imagine. It must of been horrible for them, poor buggers.
Yes, I am so lucky that my sons' are very caring.The older one is cooking dinner as we speak, bless him. xx
Hi Carole, I was told sarcoidosis is autoimmune. I have it among other things. The Royal Brompton thinking is that it may well be caused by stress. That would make sense in my case. Alison
Hi Carrotts, I know he is. I don't like letting him know I'm poorly though, because he gets worried and I have to reassure him I'm fine, just a bit sore.
I feel guilty for them for being like, I don't want to spoil their lives. But, as they live with me, i haven't got much choice. It will be diferent once they move out again. So, I hide as much as I can. No point in worrying them too much. xx
Hello there, i habe Fibro its not nice. I always get a painful arm after injections and bear in mind i have the b12 shot every three months. I usually just to rest the arm as much as possible to avoid any more pain
I knew somone else on here had it too. I read the other day that it apperently doesn't get any better. Don't know if it's true or not and i'm past caring. But, I'm going to stop reading things on the internet. Ignorance definately IS bliss. Haha.
I had no problem last time with the jab, I just think she hit a touchy spot and it was on my weak side. I'll make sure I get it in the other arm next time, Lol.
Those b12 shots are meant to be very uncomfortable I've heard. I know my Mam had them in her bum when she was pregnant and she moaned a bucketful about it hurting. She blamed it on the thick needle. lol. Mind you, that was 43 years ago. Hopefully they needles are a lot thinner now.
Oh, poor you chellshock. It must be so wearing having to go through that pain so frequently. Will you ever be able to stop having them?
I've never bothered looking into the Fibro too much because I had a lot of pain before it with the auto immune disease so I'd already put it down to that. It's hard to tell sometimes what's causing what pain and where it is. Lol.
It's good to know someone else with it to ask a few questions. Thank you for offering to answer them.
Haha KOTC, thankfully no, I love laughing. I especially love dry humour. When I went to my ESA appeal in April, my son came with me because it was a train journey to Leeds and I'd never been anywhere like that on my own before. Anway, I ended up breaking down through the grilling and they asked my son to answer a few questions. He answered a few and then they asked him if he thought I was depressed and he said, ' All I know is, she doesn't smile anymore.' It broke my heart. They thanked him for his
help and I was passed.
I'm getting back to my old giddy self now. You've got to laugh, it's the best medicine.
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Take care, love, Carole xxxx
Bronchiectasis & 4th jab.
