Sorry I've not been around and posting recently, but I do try and pop in each day and read your posts.
I care for my mum who has end stage emphysema, and nine lives I think.
She has had a foot through deaths door a couple of times this year.
When she was last discharged from hospital with yet another exacerbation that nearly killed her,She had decided that she no longer wants to be treated in hospital, knowing that this may endanger her life. I have had to move in with my mum and dad to care for her, as I had told her I would be her Carer to the end.
She has lost so much weight, 6 stone 6, we were provided with a hospital bed and a pressure relieving mattress, as she has a high risk of pressure sores. So that is in her dining room and I have a mattress on the floor next to her, as she sometimes needs a nebuliser during the night.
She had another infection which was eventually treated with levofloxacin, but she was so ill, that the GP and district nurses had set up the stuff for the Liverpool care pathway. She wouldn't drink as she thought I was trying to poison her ( she was not herself ), but I couldn't get anybody to give iv fluids unless she was in hospital, but she had already made it clear to all that she wanted to stay at home. What a decision that was, keep her home and risk her dying, or going against her wishes.
We kept her at home and the following day, the antibiotics seemed to have kicked in and she came back to us.
So that is where we are at. She is putting weight on slowly, walking about a little and back with us.
She is still not well enough for me to go home though.
I am receiving ESA and lower rate DLA for myself, with a Carer premium, as obviously I have health issues. I have to go to the sodding job centre on Tuesday for a work focused interview. The last time I went after getting through the ATOS assessment, told me that the Carer premium was not because I was a Carer, but because I was claiming DLA. Stupid woman!!!!
So there we are, I will try and post more, but I'm usually kept on my toes here