hi everyone l just like to say some thing about the poll on exercise how anyone is expected to exercise while suffering c.o.p.d is beyond me

[minkymoo]

because lm a servere suffera and l carnt exercise due to having this condition and cough all the time its awwfull and l get pain in my right side upper back near the shoulder blade

[Hidden]

Many end up in a bad way if they don't exercise minkymoo. I know I would have been chair bound by now if I had not done PR and continued with my exercise.

Check with the BLF helpline Monday to Friday, 10am to 5pm 03000 030 555 regarding your persistent cough and pain, I feel sure there will be something to help you with these symptoms.

PR (pulmonary rehabilitation) is so helpful for patients who have deconditioned and feel unable to exercise, the course helps in so many ways. Your GP can refer you. Check out PR videos on blog post link below to hear other people talk about PR.

healthunlocked.com/blf/post...

Hope you will get some relief from the persistent coughing and pain very soon and I hope the videos will inspire you just a little.

Best wishes BC

[minkymoo in reply to Hidden]

well thanks for the reply but lv had the cough 5 yrs now and my doctor said its related to the c.o.p.d emphasima which my dad had and my 2 sisters have got they say it isant eredertory but l believe it is its also like any other health condition it effects people in different ways but its nice to have this group as it just assures people that there are other people out there that suffer c.o.p.d and lm not on my own but thanks for the reply

[pearlsmith in reply to minkymoo]

hi the cough is due to you continuing to smoke and the pain will be strain on your lungs through coughing and the pain in your back is probley caused through the strain of coughing might be worth going back to your g.p. and ask him or her what other help they can offer in stoping smoking

[pearlsmith]

hi minkymoo everyone can exercise even if its chair exercise in our breath easy group we do chair exercises for those in wheel chairs and those who cant stand and the ones that can stand and do it will stand and do it

[minkymoo in reply to pearlsmith]

well thankyou pearl smith your reply has been taken on board l hope you are ok and you don't suffer as bad as some people do with the dreaded illness

[pearlsmith in reply to minkymoo]

mine is much worse in autumn and winter has is most of us with c.o.p.d its best to try keep active and to keep warm although mine is more affected through mobility with have arthritis in my knees and recently started in my feet and the rain and wind doesn't help this

[katieoxo60]

well minkymoo, many people with COPD exercise, the relevent point is exercise within your capacity which is what PR is for to assess your capability and maybe improve your stamina for exercise as well as improving your breathing .I appreciate what you say about a cough I have one and have had it for many many years plus arthritis in hands and feet. The cough is normally part of COPD some of us are effected worse than others, I myself have a severe cough although my COPD is only moderate, I have to do exercises to control the cough and also exercises daily for my arthritic joints. So please do not poo poo the idea of exercise for health problems as they are about maintaining reasonable levels of health not making your condition worse or curing it.Some of my exercises can be adapted to do in a chair hope this does not cause offence as it is not intended too.

[chrissie53]

I to do excercise minkymoo,,like all i have the cough,,also have rhumatoid in hands and feet which is so painful at times,,but take it in my stride,,i walk the dog 2 times daily,,up in the hills in all weathers,,good excercise for lungs and plenty of deep breathing,,are you still smoking? I,m sure someone can get you into a pulomary rehab class,,they are good and i,m sure you will benefit from them

[Hidden]

Hello you sound like my husband! He is a severe sufferer with a cough and always complained that he could do no exercise. Vicious circle ! But he went on the pr course two years ago (in the middle of his second). It saved his life and showed him how to exercise. After 8 weeks there was a remarkable difference please ask for a referral from your doc. I am sure it will help. Take care and be positive! TAD x x

[Lynne1955]

I'm moderate and until a recent non lung related illness did a lot of exercise at the gym and I will again soon. Everyone's suggestion about PR is good. Getting breathless in a controlled environment, such as PR, is good for you even though it is hard work. It really will help improve your management of the condition along with staying smoke free, eating healthily and having a healthy weight.

Lynne xx

[KingoftheCocktails]

I have done PR and talked at several PR groups. The benefit of taking part is tremendous.

as I have seen in so many people minkymoo

KOTC

Your daily humour tonic

[kimmy59]

I agree with everyone exercise makes you feel better, I thought the same how am I supposed to exercise when I feel like this, I'm severe too. But you should seek professional advice that's why we go on Pulmonary Rehab courses they teach you how to exercise safely and how to breathe properly while doing it, some of us need oxygen while doing it to take the strain off our other organs. I would ask your doctor, I know from reading on here it's been a life changer for lots of people.

Kim xxxx

[jojam]

When I first went to Pulmonary Rehab I had to be taken in a wheelchair, after the six weeks (12 sessions) I was able to walk out of the hospital & have really found the benefit of exercise. I now have a much better quality of life & have learned how to manage & LIVE with severer emphysema. I'm on oxygen 16 hours a day & ambulatory.

Exercise will improve your condition & well being. My moto is 'Do a little rest a little do a bit more'

Best wishes

Jo

[Suzeelouise in reply to jojam]

How far do you push your self as I have same as u on oxygen permanent but wen I exercise I my lungs feel like they burning I if push my self too much

[jojam in reply to Suzeelouise]

Hi Suzeelouies. Have you attended Pulmonary Rehabilitation course? If you have not then ask to be referred for a PR course or at least to a Respiratory Physio who can help you with exercises tailored to your personal needs. Exercise needs to be built up gradually and according to your individual condition........Do a bit Rest a bit Do a bit more. Some days I can do more than others but as the saying goes 'No pain No gain!'

Best wishes

Jo

[Suzeelouise in reply to jojam]

Thank you for your reply. Yes i went to a couple of those classes which always had lectures after which learnt you about your condition but there were comments made about the progression of the disease and I'd go away depressed I'm only 49 and try really hard not to hear no negativity as it depresses me so just try to copy the exercises at home best I can Ty x

[jojam in reply to Suzeelouise]

That's a shame I'm sure if you had continued with the course you would have found that the education is not all negative, there are a lot of positives that can enable you to Live well with COPD. The BLF do a DVD called "Living well with COPD" which may help you. I found that the support from the Physio & the other members of the PR group helped me to be more positive about my conditions. I would recommend the course to anyone who has a lung condition.

Best wishes

Jo

[stone-UK in reply to Suzeelouise]

Hi

This exercise programme is doing me good!'

If you can say the whole sentence without stopping, you are not working enough!

If you can't speak at all, or can only say one word at a time,you are working to hard!

If you are able to say the sentence with one or two stops, that's just right.

The above is a extract from the BLF Exercise Handbook.

•


[Suzeelouise in reply to stone-UK]

Wow that's just what I was wondering I hope your right is a good g guide does anyone get headaches after exercise is that normal Ty

[minkymoo in reply to Suzeelouise]

no l don't know the answer to that question but this last five nights l been waking up with headache and my anckels are like balloons l told my doctors secretery to ask doctor if he knows what it is l think its known as odeama not sure but it feels like someone is grabing my anckels and then when l get up to stand it feels like sponge realy hrd to explain it

[jojam in reply to minkymoo]

If you continue to keep waking up with a headache you could be retaining CO2 which called also be contributing to ankle swelling. You need to have your blood gases checked. I suggest you go to see your GP or Respiratory nurse.

Best wishes

Jo

[minkymoo in reply to jojam]

had my oxygen thing put on finger other day it was 94 it was ok so l don't know where its going wrong lm waiting for doctor to ring me back to day about anckels and headaches so see where we go from here

[jojam in reply to minkymoo]

The oximeter is not able to distinguish between O2 & CO2 the only way to tell is by having blood gases tested. I went for some months suffering morning headaches but my oximeter readings were ok it was not until I had blood gases done that they discovered I was retaining CO2 during sleep.

[MarieW-F in reply to Suzeelouise]

I used to get headaches duing and after exercise - its to do with the CO2 as someone else said. learnign how to breathe and control your breathing suring exercise has all but eradicated them. Marie

[Hidden]

What wonderful advice you have been given,by lovely people.

I do hope you take there advice on board,as I'm sure you could start to feel a little better about yourself,& not feel so helpless!

Good luck with it all, xx