Hello Everyone, Can anyone tell me anything about Alpha 1 Antytripsin Please ?

[hufferpuffer]

I've just found out I have it after being diagnosed with Emphysema 9 years ago, I asked at the time if there was a possibility of Alpha 1 and the GP I saw said not to be 'silly' as I would be dead already ( 49 at the time ) ??? last year same doctor seemed to think I was secretly smoking! ??? ( I packed it in 9 yrs ago! ) I can't seem to find much info and was wondering if

it's a faster decline in lung function, thanks for reading and any thoughts...huffferpuffer

[chellshock]

Cant answer your question but wanted to say what a lovely picture x

[hufferpuffer in reply to chellshock]

Thanks Chell, I took it in the garden about two months ago, it's a Peacock on an Echinecea! x

[chellshock in reply to hufferpuffer]

It look amazing so colourful x

[Hidden]

A good explanation is here :

alpha1.org.uk/

You may want to check BLF's info too:

blf.org.uk/Search?query=alp...

I would phone the helpline tomorrow to ask about the questions you need to put to your doctor about the diagnosis, care and treatment.

Take good care of yourself.

Best wishes BC

[hufferpuffer in reply to Hidden]

Thank you BC! much appreciated!

[Hidden]

Really stunning picture. And I agree with BC call the helpline - I am sure they could help.

Take care, TAD xx

[hufferpuffer in reply to Hidden]

Thanks TAD I'll give them a call xxx

[mattcass]

Hi hufferpuffer I'm so sorry I cannot answer your question, But may I say what a terrific photo well done. Matt

[hufferpuffer in reply to mattcass]

Thank you Matt it's amazing what you can do with a little didgi camera!

[Toci]

I don't know much but I do know it can be hereditary. If you have children they need to be checked and counselling should be offered.

[hufferpuffer in reply to Toci]

Yes it is hereditary! its in my gene's, I've told my children and nephews and nieces, fortunately most of them are non-smokers. thanks Toci

[Sooki]

My sister is antytiptrin deficient and I am partial deficient,it is hereditary ,my sis is 66 with severe emphysema ,and not dead yet.I do know that tha Q E hospital in Birmingham was doing trials as my sister was involved.The Internet is also a good source.I also inherited IPF from my mother..,and I also have emphysema ,ain't life a sh.. As far as I am aware antytiptrin deficiency in itself does not kill you as it is a deficiency ,your lungs do not have the protection that others do.Hope this helps.

[hufferpuffer in reply to Sooki]

Thank you Sooki that does help a lot! guess we're all in the same boat! take care,huff xxx

[Hidden]

Yes just know its hereditary.Not much else I'm afraid!

I hope you give the Doctor the rounds of the table! He sounds a w.....!!

Loved the photo,beautiful xxx

[fishtail]

alpha 1 is not always hereditry (though in my case it is ) a friend of mine has it due to pneumonia in childhood.My diagnosis is Alpha 1 AD,my mother had it,my two nephews have it and I'm happy to say my 3 sons have all been tested and are clear.From what I've been told because I have copd too it does have a big impact on my life span.however I intend to take really good care of myself ,take all my meds and live a good life.xxx